A new video on pacing and activity management – at such a critical time for us all
This is a film for all seasons about pacing and activity management in people with ME – and in a certain type of Long Covid.
Year: 2020
The ME Association ME/CFS Research Round-up
This week 6 new studies about ME/CFS and Fibromyalgia were published including a small study from Canada that made the news…
ME Essential Magazine & the Christmas Supplement will be with Members very soon!
ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
ME Association Covid-19 & ME/CFS Free Range of Leaflets
We have updated the range of free leaflets about Covid-19/ME/CFS and the current restrictions and include a new leaflet aimed at Students…
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
From the West Country – A generous Christmas offer to help the ME Association
Emma Roberts has a son, George, who has M.E. She has created special Christmas card designs to help raise money for the ME Association.
The ME Association ME/CFS Research Round-up
Eight new studies have been published and we highlight several of them including one about epigenetics and ME/CFS,
Situations Vacant: We want a Webmaster to join the ME Association team!
The ME Association is recruiting for a new Webmaster – someone who can look after the website and website shop and grow its online presence…
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
What do you think about the new NICE Clinical Guideline on ME/CFS?
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association ME/CFS Research Round-up
We report on 5 new research studies and highlight the discovery of bioenergetic defects in the skeletal muscle of people with ME/CFS.
Situations Vacant: We are looking for a social media specialist to join the ME Association team!
We seek a specialist to manage the charity’s growing social media. It is a full-time position that enables you to work from home…
All-Party Parliamentary Group on M.E. Invite Your MP to Attend November Meeting
Please invite your MP to the next APPG on ME meeting. We’re discussing diagnosis, management and the new NICE clinical guideline on ME/CFS.
New MEA Leaflets: Prognosis & Quality of Life, Disability Classification & Illness Severity
The new leaflets explain what might be expected from a diagnosis of ME/CFS and how the illness is classed as a disability by the UK Government.
Are you confused by the latest Covid-19 Lockdown and the restrictions now in place around the UK?
We attempt to summarise the situation in England, Scotland, Northern Ireland and Wales as it relates to people with ME/CFS.
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
Ian Lazonby was a vet and a lawyer before glandular fever as an adult led to M.E. He talks about his experience with the condition, how he has recovered to an extent, and has accepted M.E.
Sarah returns to the beginning for her ‘Super Six’ challenge for the ME Association
Sarah Elsby has begun her impressive walking challenge in support of her mother who has M.E. Please donate and help the ME Association do more for this vulnerable community.