Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
Month: June 2020
ME, Myself and I: Caution and Controversy
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
MRC: Largest Genetic Study into ME is Launched!
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
The ME Association End of Week Research Round-up
This week 5 new research studies have been published. We provide a lay summary of several of them.
The DecodeME Genetics Study: Letters to The Times
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
The New NICE Clinical Guideline on ME/CFS to be Published in April 2021
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Patients, Scientists, and Advocates Celebrate £3.2m Funding for DecodeME, the Largest Ever ME/CFS DNA study!
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Help Advance M.E. Research with an Application to the JLA Priority Setting Partnership
Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!
The ME Association End of Week Research Round-up | 19 June 2020
In the last week, 4 new research studies about ME/CFS have been published.
Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness | 19 June 2020
“By adopting this resolution, Parliament gives voice to patients’ concerns and supports their legitimate requests for greater awareness and funding for research.”
Physios for M.E. throw down a challenge to their profession in their first podcast | 12 June 2020
Four physiotherapists who became profoundly disturbed by the way their profession was failing to help people with M.E. get better spoke directly to 59,000 colleagues and allied health professionals in their first-ever podcast this week.
These people have been sick with coronavirus for more than 60 days – doctors don’t know why | Washington Post | 11 June 2020
While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.
Scientists call for more European research into ME/CFS | European ME Coalition statement | 10 June 2020
14,000 people have signed this petition to the European Parliament demanding ME/CFS research.
Sixth formers tell us what’s making them run and walk to raise ME awareness | 9 June 2020
Meet four teenagers who want to set the world of ME Awareness ablaze. They tell us why!
Carers Week 2020: Beth’s Story.
“I have been classed as a carer to both my mum & brother since I was 3 years old, and this year I will have been suffering from M.E for 17 years.”
Carers Week 2020: Selina’s Story – Parenting with ME
After many years of fluctuating neurological conditions in 2018 my health changed for the worse.
Focus on young people at next meeting of Westminster APPG on ME | 10am, 16 June 2020
Virtual meeting – please email your own MP and ask that they attend this important meeting
‘COVID-19 Can Last for Several Months’ | long read in The Atlantic | 4 June 2020
The disease’s “long-haulers” have endured waves of symptoms, and disbelief from doctors and friends.