“The distance round the allotments is approximately 340 yards, so it should take me 14 days to reach the 2.6-mile goal,” Juan Cortlett.
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
This leaflet provides a summary of what biomedical research is telling us about M.E. It considers key symptoms, common triggers, and explains how various aspects of disease pathology could be linked to specific symptoms.
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
“I will never forget her, the memories we shared together and the things she taught me about true friendship,” Emily Foster.
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
“It is incredible how strong she has been. I don’t think I would have coped with what Dee has experienced. She is my inspiration to keep on going and to support her on this journey.”
“I continue to be confined to the house. Sitting or standing up for more than 2 minutes makes me very lightheaded, so I spend 23 hours each day lying down.”
“I repeatedly pushed myself to return to work. Every time I ended up off sick again. I was bewildered by a situation where the will to be well failed every time.”
“Positives are there but, in the depths of this dreadful disorder, sometimes they are very hard to see.”
The research bulletin highlights 3 of 6 new studies into ME/CFS and we’ve provided abstracts from all 6 studies published this week.
“The link between severe viral infection and M.E. is clear, as evidenced in the previous outbreaks of SARS and Epstein Barr.”
“I feel like I’ve missed so much. It’s like I’ve lived only half a life for 30 years, and then to cap it all in 2016 I was diagnosed with bowel cancer.”
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
We’d like to know how you have been coping with the Covid-19 lockdown. Please take part in the survey and Facebook discussion.
“This provides an explanation for the common observation that ME/CFS patients often report a sharp decrease in the number of colds and other viral infections they experience…”
“While writing this I am again thinking, “Why me?” I do not know when I am going to stop thinking about his question, maybe I never will.”
“I was a fit healthy football-mad teenager and I enjoyed other sports too. All seemed well but then I caught scarlet fever…”
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
“Yes, school was good, no I wasn’t lying. I just wanted to die. I didn’t care, I was happy to just slip away to stop existing. I was ten years old!”