ME Awareness: The Lost Years by Stephen Powell | 09 May 2020


The Lost Years by Stephen Powell.

From the age of 39, I spent many years as a zombie due to myalgic encephalomyelitis/encephalopathy or M.E. Lying in a recliner watching a silver birch grow outside my window.

When I improved sufficiently I joined a pottery class. It was a whole day, A-level class. I usually managed 9am to 1pm, but never longer.

Stephen Powell.

The price was then spending a week doing nothing but observing the tree. But I was immeasurably glad to finally be able to do something positive.

Eventually I realised my energy levels would perhaps never return to what they had been previously.

I was lucky enough to be able to gradually set up a studio in my garage, reducing my energy expenditure and allowing my activity to be spread more evenly through the week.

My activity levels are a little better now, but not too much. This week now aged 71, I’ve spent two days teaching two of my grandchildren throwing pots, calligraphy, and Photoshop.

I will pay after they go home tomorrow (I will not be acquiescent as I am today), but I’ve had the most fabulous time. I am favoured to be able to glory in the next generation of my family’s journey in life.

In the end, M.E. could not take that from me. Positives are there but, in the depths of this dreadful disorder, sometimes they are very hard to see.

Visit the ME Awareness Media Toolkit and download posters and graphics.

The ME Association

Please support our vital work

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.

Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.

Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. magazine!


ME Association Registered Charity Number 801279


ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.