MEA Summary Review: The dysfunctional autonomic nervous system in ME/CFS | 24 January 2018
An ME Association research summary that explains the autonomic nervous system, recent research findings, and provides some self-help tips for symptom relief.
2018
Fundraising feature: A coffee morning for M.E.? | 23 January 2018
Fundraising feature: A coffee morning for M.E.? | 23 January 2018 Read More »
Fundraising for the ME Association doesn’t have to be physical. And you don’t even have to leave your own home to do it.
Walk the distance, make a difference! Walk for M.E. on ME Awareness Day! | 19 January 2018
The ME Association is teaming up with Just Walk to offer this unique opportunity to walk for M.E. on the 12th May which is ME Awareness Day.
MedPage Today: An interview with Francis Collins, Director of the NIH in America, about the priorities for ME/CFS | 18 January 2018
The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.
Forward ME – Meeting with Kathryn Pugh, Deputy Head of Mental Health, NHS England | 18 January 2018
Forward ME Minutes of the Meeting held in the House of
Reviewing the NICE guideline for ME/CFS: The Stakeholders Engagement Workshop – A Report by Dr Charles Shepherd | 17 January 2018
Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.
Scottish Parliament to host screening of Unrest – Invite your MSP to attend | 17 January 2018
Unrest is being shown at an event for MSPs at the Scottish Parliament on 30th January 2018. If you live in Scotland, this is an incredible opportunity to make a concerted impact on decision makers.
Independent: Time for Unrest: Why patients with ME are demanding justice | 07 January 2018
A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.
“It has taken my life” – Sheringham woman speaks out about living with the debilitating disease ME | 06 January 2018
“I was fit, I went rambling and went to the gym,” she said. “But ME has taken my whole life and any fulfilment I might have had.”
Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018
Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018 Read More »
This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.
Website survey: What do you think should be our research funding priorities for 2018? | 04 January 2018
We believe it is important to obtain regular feedback from people with M.E. as to what they regard as the most important priorities for UK research.
Peeblesshire News: Peebles gives Phoebe her perfect present | 02 January 2018
Peeblesshire News: Peebles gives Phoebe her perfect present | 02 January 2018 Read More »
In October we reported how Phoebe Boag had reached out to locals to raise funds for an electric wheelchair, having been housebound for two years.
Buzzfeed News: A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience | 30 December 2017
A recent scientific trial has led to acrimonious debates over chronic fatigue syndrome, aka ME, and boosted interest in a secretive therapy that some call a “cult” and others call a “miracle”.