This is the fifth Christmas Paul will spend bedbound, away from his family, his partner Ciara and their son, Naoise.
He has borne this life changing illness with such strength and determination that all we can do is follow his lead and keep believing science will catch up with ME and that sufferers will finally get the care they deserve.
Fundraising Feature: Christmas Spirit – Courtesy of The Crooks | 21 December 2017 Read More »
Last weekend, The Crooks, a lively saxophone quartet, played to the Christmas crowds at Borough Market in London, in aid of the ME Association.
Baz Hornsby’s flair for dreaming up new challenges, his passion for seeing them through, and his ingenuity when things don’t go quite right, are the stuff of legends.
University of Gloucestershire lecturer’s film is up for an Oscar | 10 December 2017 Read More »
“But what is so special about this is that it is about visibility. We set out to make a film about people who were disbelieved, rarely listened to, and often made invisible…
Please support Helen and Neo in their Santa Dash for M.E. today | 10 December 2017 Read More »
Thank you to everyone who has supported Helen’s challenge. You can still donate to her JustGiving page and help sustain our vital work in 2018.
Shannon Tiday hit the headlines back in September, following publication of the controversial SMILE trial that suggested M.E. could be treated by the Lightning Process. She took to Facebook to protest this association, and her poignant video went viral.
My family and friends all know how passionately I feel about supporting the ME Association. But it’s one thing to have passion and quite another to have the courage and confidence to stand up in public and be counted.
We recently reported the results of research from Professor
Members of the Forward ME group met with Professor Mark Baker from NICE to discuss the recent decision to review and update the clinical guideline for ME/CFS. These are the minutes from that meeting, dated, 31 October 2017.
Unusual headaches, including migraine, form part of ME/CFS diagnostic criteria. News last week revealed a significant breakthrough in the treatment of migraine, and we have decided to use this month’s website survey to look at migraine type headaches.
If you haven’t already done so, please sign up for easyfundraising before you go online and order all those Christmas presents, or book that holiday. It won’t cost you anything more, but it will raise precious funds for the ME Association!
