An East Sussex man, who changed from being a fit and active head of maths at a leading Kent School 10 years ago to someone who nowadays has to summon up all his energy to walk the dog, spoke up for much more biomedical research into the illness on the BBC South East news programme yesterday.
Graham McPhee, from Crowborough, said that at the age of 49 he used to be able go out to play badminton after he got home for a full day's work. Today, life is much more restricted to his home and immediate surroundings.
“Over the last 25 to 30 years, I have only found five biomedical studies. No wonder we have no tests, no treatment… nothing”, he told health correspondent Mark Norman.
Graham featured in all three episodes of the BBC South East news programme yesterday – click on the link below to watch him on the main evening show at 6.3Opm. The item starts 17:20 minutes in and finishes at 19:54.
The programme is available to watch on the BBC iPLayer until 7pm tonight (Wednesday, 26 August).