Tag: Post Viral Fatigue Syndrome

The ME Association appeared in several media publications at the weekend sharing opinion about Long-Covid and the proposed new specialist clinics.

In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.

This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.

The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.

In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.

Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.

Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.

“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”

“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.

We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.

Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.

“The link between severe viral infection and M.E. is clear, as evidenced in the previous outbreaks of SARS and Epstein Barr.”

Post-viral fatigue is being reported following Covid-19 infection. We explain the issue and offer best management guidance.

Dr Shepherd has updated the weekly bulletin on covid-19 and ME/CFS.

A controversial leaflet from Oxford Health Foundation Trust has been widely criticised – and now appears to have been removed.

Evidence is mounting that Covid-19 infection might lead to instances of PVFS meaning we may see an increase in cases of Myalgic Encephalomyelitis.