BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
pacing
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it! Read More »
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise Read More »
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
The Times: Warning over conflicting medical advice to coronavirus recovery patients Read More »
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd Read More »
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Physiotherapists taught three little words for the care of people with Post-Viral Fatigue Syndrome | 3 June 2020
Rest, Nutrition and Sleep – should be new norm working with patients with PVFS, physios urged.
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
The Guardian: ME and the perils of internet activism | 29 July 2019
The Guardian: ME and the perils of internet activism | 29 July 2019 Read More »
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…