The Mirror: Vulnerable say they’ve been ‘forgotten’ as Covid vaccine goes to young and healthy
“It’s just a postcode lottery, isn’t it?”, says Claire Tripp, whose 19-year-old daughter Emma has severe ME.
Covid-19
Guardian: The NHS must learn from its mistakes with other post-viral conditions such as ME/CFS – more research is vital
George Monbiot spoke with Dr Charles Shepherd before publishing a very good article about the lessons that should be learnt from ME/CFS for those now suffering from Post or Long-Covid.
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Parliamentary debate on Long-Covid: What should be learned from ME/CFS? Read More »
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead Read More »
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust,
We demand changes to ‘Observer’ article
We demand changes to ‘Observer’ article Read More »
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
The ME Association ME/CFS Research Round-up
The ME Association ME/CFS Research Round-up Read More »
This week 6 new studies about ME/CFS and Fibromyalgia were published including a small study from Canada that made the news…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS Read More »
The new NICE guideline has removed graded exercise as a recommended management option…
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
Virginia Water Magazine: Why aren’t people getting better from Covid-19? With Dr Charles Shepherd
Dr Charles Shepherd wrote a piece for The Virginia Waters Magazine where he shared his insights into Post-Long Covid-19.
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid Read More »
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
Forward-ME: NICE issue clarification about new Chronic Pain Guideline & expand on statement for GET in Post-Covid-19
NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
“I was infected with coronavirus in March, six months on I’m still unwell,”
“I was infected with coronavirus in March, six months on I’m still unwell,” Read More »
Charlie Russell, 27, is one of an estimated 600,000 people with post-Covid illness, a condition that may give an insight into ME – with Dr Charles Shepherd.
Potential research into Long-Covid and ME/CFS at the ME Biobank
Potential research into Long-Covid and ME/CFS at the ME Biobank Read More »
The ME Biobank team with Dr William Weir are hoping to conduct research into Post-Covid and ME/CFS. Please register your interest in taking part.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it! Read More »
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise Read More »
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
The Times: Warning over conflicting medical advice to coronavirus recovery patients Read More »
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.