“It’s just a postcode lottery, isn’t it?”, says Claire Tripp, whose 19-year-old daughter Emma has severe ME.
“I want to assure you that we are committed to vaccinating according to need, and you will not be left out or forgotten in this process.”
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.
We want answers from the UK authorities to some of the key questions of our times.
George Monbiot spoke with Dr Charles Shepherd before publishing a very good article about the lessons that should be learnt from ME/CFS for those now suffering from Post or Long-Covid.
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
We want to hear your views about having the Covid-19 vaccination and we’d welcome your feedback if you have already had the vaccine.
Dr Shepherd discusses the Covid-19 vaccination programme and issues relevant to people with ME/CFS
The ME Association has written to Professor Chris Whitty, Chief Medical Officer, and the Joint Committee on Vaccination and Immunisation, to seek clarification on COVID-19 vaccine priority for people with ME/CFS Dear Professor Whitty and the Joint Committee on Vaccination and Immunisation, The ME Association is starting to hear from people with ME/CFS who are […]
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust, Amersham Hospital, Whielden Street Extracts Re: Long covid: doctors must assess and investigate patients properly Dear Editor, I strongly echo this sentiment from my long COVID colleagues about assessing and investigating patients properly and would like to add that doctors must also diagnose patients properly. […]
by Dr Charles Shepherd, Medical Adviser, ME Association With the start of vaccination against COVID-19 occurring this week, we are receiving queries about where people with ME/CFS will be on the priority list. The Joint Committee on Vaccination and Immunisation (JCVI) has produced a list of different groups of people in the order that they […]
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…
This week 6 new studies about ME/CFS and Fibromyalgia were published including a small study from Canada that made the news…
ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!
We have updated the range of free leaflets about Covid-19/ME/CFS and the current restrictions and include a new leaflet aimed at Students…
The new NICE guideline has removed graded exercise as a recommended management option…
We attempt to summarise the situation in England, Scotland, Northern Ireland and Wales as it relates to people with ME/CFS.
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.