MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
coronavirus
NICE cautions against using graded exercise therapy for patients recovering from COVID-19
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
Fundraising: The Great North Run – Do it a different way this year!
If able, please support the ME Association: Two solo events have been arranged to help celebrate the 40th anniversary of the Great North Run!
Out Now! The Summer Issue of ME Essential Magazine!
The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
Latest Free Leaflet Update: Covid-19 and ME/CFS by Dr Charles Shepherd
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
These people have been sick with coronavirus for more than 60 days – doctors don’t know why | Washington Post | 11 June 2020
While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.
New ME Association Guidance: Key points on Employment, ME/CFS and the Coronavirus | 3 June 2020
For people with ME/CFS going back to work. Discusses the Returning to Work Risk Assessments.
ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
ME Awareness: Columbia University: Will there be a Post-COVID-19 form of ME/CFS? | 26 May 2020
“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”
Press Release: Couple swim length of English Channel at home for the ME Association | 20 May 2020
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
ME Association Guidance: Reducing the risk of Covid-19 and PVFS/ME/CFS | 19 May 2020
We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.
ME Awareness: “GP’s have not been given any training to recognise a patient with ME,” by Smita Dutta | 13 May 2020
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
ME Awareness: BBC News: Eastbourne mum with ME gets some life back after years lost in lockdown | 13 May 2020
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
ME Awareness: Higher risk of developing ME after coronavirus diagnosis, warns University of Leicester | 08 May 2020
“The link between severe viral infection and M.E. is clear, as evidenced in the previous outbreaks of SARS and Epstein Barr.”