Byline Times: ‘A Rollercoaster Of Awful Emotions’
Byline Times: ‘A Rollercoaster Of Awful Emotions’ Read More »
Millie McAinsh’s family sought help when the ME sufferer could no longer eat – only for her to to be sectioned…
America: ‘ME/CFS is unambiguously biological, with multiple organ systems affected…’ Dr Avindra Nath
Led by neurologist Avindra Nath, MD, the researchers report several physiological differences between people with ME/CFS and healthy volunteers.
Failings in the care of patients with Very Severe ME by Dr Nigel Speight
Failings in the care of patients with Very Severe ME by Dr Nigel Speight Read More »
In the UK over recent years there have been a succession of cases of very severe ME who have been mismanaged by the medical profession, in the worst cases with fatal consequences.
Open Access Government: Understanding the impact of ME/CFS with Dr Charles Shepherd
Open Access Government: Understanding the impact of ME/CFS with Dr Charles Shepherd Read More »
ME/CFS is a disabling, multisystem, and often long-term illness that involves the brain, muscle, and immune system.
Australia: ‘Long Covid may be no different from other post-viral syndromes’
Australia: ‘Long Covid may be no different from other post-viral syndromes’ Read More »
Queenland’s Chief Health Officer Dr John Gerrard, said it was “time to stop using terms like ‘long Covid”…
The Guardian: Letters: Why ME/CFS is still so poorly researched and treated
The Guardian: Letters: Why ME/CFS is still so poorly researched and treated Read More »
‘George Monbiot has written an excellent critique of why the medical profession is still failing to provide proper care for people with ME/CFS…’
Appraisal: NICE Guideline on ME/CFS: diagnosis and management
Appraisal: NICE Guideline on ME/CFS: diagnosis and management Read More »
The NICE Guideline rejects the notion that ME/CFS is caused by deconditioning….
BMJ: Cognitive dysfunction in Long Covid – and in ME/CFS!
BMJ: Cognitive dysfunction in Long Covid – and in ME/CFS! Read More »
A recent review published by the British Medical Journal on Long Covid… that didn’t consider the notable overlap with ME/CFS…
Time’s running out – could you spare us a minute?
Time’s running out – could you spare us a minute? Read More »
Time’s running out, please, for people to nominate us in
The Guardian: The outdated treatment of ME/CFS patients is a national scandal!
The Guardian: The outdated treatment of ME/CFS patients is a national scandal! Read More »
The new evidence-led thinking has yet to penetrate parts of the health system: some patients are still being mistreated.
But Kieran couldn’t make it to the finishing line
But Kieran couldn’t make it to the finishing line Read More »
Spring was in the air, and in the soles of
Putting their best feet forward for Kieran
Putting their best feet forward for Kieran Read More »
In a tribute to the support we’ve given them, six
Renaissance for the sport at Pot Black, Bury St Edmunds
Renaissance for the sport at Pot Black, Bury St Edmunds Read More »
Colin Freeman has got charity fundraising in his home county
MAGENTA Trial: GET is not an effective treatment for ME/CFS
MAGENTA Trial: GET is not an effective treatment for ME/CFS Read More »
Graded exercise therapy is not an effective treatment for chilren and young people with ME/CFS.
JNNP: NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence
JNNP: NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence Read More »
The National Institure for Health and Care Excellence robustly defends its Guideline on ME/CFS.
The UK ME/CFS Biobank: People with severe form of illness needed for HHV-6 study!
The UK ME/CFS Biobank: People with severe form of illness needed for HHV-6 study! Read More »
The UKMEB is looking for people with severe ME/CFS for a ‘spit and post’ DNA study.
Ella takes on the Thames Towpath
Ella takes on the Thames Towpath Read More »
A student journalist turned out for some tough towpath running
BBC bosses issue warning to Dragons’ Den stars over strict guidelines after on air breach
The BBC have confirmed stars of Dragons’ Den have been
Identifying antiviral protein as a potential biomarker for Long Covid
Identifying antiviral protein as a potential biomarker for Long Covid Read More »
A potential mechanism underlying Long COVID which could represent a biomarker
The Guardian: Long Covid ‘brain fog’ may be due to leaky blood-brain barrier, study finds
From forgetfulness to difficulties concentrating, many people who have long