NICE Guideline > Access to care and support

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Access to care and support

1.8 Access to care and support

Also see the section on care for people with severe or very severe ME/CFS.

1.8.1 Health and social care organisations should ensure that people with ME/CFS can use their services by:

  • adapting the timing, length and frequency of all appointments to the person's needs
  • taking into account physical accessibility, such as how far the person has to travel, whether there is suitable transport and parking, and where rooms are for appointments
  • taking into account sensitivities to light, sound, touch, pain, temperature extremes or smells
  • providing care flexibly to the person's needs, such as by online or phone consultations or making home visits.

1.8.2 If a person with ME/CFS misses an appointment:

  • do not discharge them for not attending because it could be due to their symptoms worsening
  • discuss why they could not attend and how the multidisciplinary team can support them.

1.8.3Be aware that people with ME/CFS are unlikely to be seen at their worst because:

  • debilitating symptoms or the risk that their symptoms will worsen may prevent people from leaving their home
  • cognitive difficulties may often mean people wait until they feel they can speak and explain clearly before contacting services.
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