Welfare reform round-up: new independent disability panel, applications opening soon Read More »
Alongside the promised Personal Independence Payment (PIP) review, the Government […]
Parents and campaigners are raising urgent concerns about the government’s
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast Read More »
Dr Ken Friedman (Associate Professor of Pharmacology and Physiology, New
BACME: ME/CFS Tube Feeding Survey Read More »
British Association of Clinicians in ME/CFS (BACME) are conducting a
Annals of Medicine: Mitochondrial function is impaired in long COVID patients Read More »
On the 12th August, 2025, the following paper, ‘Mitochondrial function
ME Essential: Winter 2022: Men don’t talk about things – or do they? Read More »
Along with ME/CFS, David, who also suffers with Postural Tachycardia
ME Essential: Summer 2023: There is always hope! Read More »
By Rachel White Before I developed Myalgic Encephalomyelitis, I was
The Times published the following letters (9th August 2025) in
Saga of Royal Free Disease by Dr Melvin Ramsay is now an e-book! Read More »
Dr Melvin Ramsay’s book, ‘Myalgic Encephalomyelitis and PostViral Fatigue States:
**Trigger Warning: Upsetting Content – also discusses the wrongly assumed
Kara Jane’s Father interviewed on Channel 5 News Read More »
Kara Jane Spencer was a singer and songwriter living with
David Tuller interviews Prof Chris Ponting about Decode ME Results Read More »
David Tuller, DrPh, has recorded an interview with Prof Chris
BACME Statement on DecodeME study results Read More »
BACME has sent the ME Association the following statement to
Kara Jane’s new album is out today Read More »
‘In Limbo’ is the name of the new album released
Channel 4 News Video: ME linked to your genetics – early study indicates Read More »
Channel 4 News have broadcast a report on Decode ME’s
The Guardian: Scientists find link between genes and ME/CFS Read More »
“These provide the first robust evidence for genetic contributions to
Decode ME release initial DNA results! Read More »
The DecodeME team announce results from the analysis of 15,579
Scotland: Two Leading Long Covid Charities Resign from Strategic Long Covid Network Read More »
Today (05.08.25), Long Covid Scotland and Long Covid Kids have
By Ella Smith, ME Association Welfare Rights Consultant In a
Severe ME Week 2025: 500 Days in Bed Read More »
This year, for Severe ME Awareness Week 2025 (4th-10th August)
