Frontiers Press Release: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones | 20 March 2018
Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’
ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018
“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS and the NICE guideline review | 16 February 2018
There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.
Stanford Scope: Exercise elevates blood signature difference between people with, without ME/CFS | 16 February 2018
A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.
NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018
NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018 Read More »
NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.
MEA Summary Review: Elevated BNP levels in ME/CFS associate with cardiac dysfunction | 14 February 2018
A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.
Westminster Hall Debate: The PACE trial and its effect on people with M.E. – A meeting with Carol Monaghan MP | 08 February 2018
Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.
The Press and Journal: The ME generation want better care across Scotland | 30 January 2018
Jennifer Brea, the director of an award-winning film about the difficulties of living with ME, will join the calls for enhanced care during an event at the Scottish Parliament this evening.
MedPage Today: An interview with Francis Collins, Director of the NIH in America, about the priorities for ME/CFS | 18 January 2018
The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.
Reviewing the NICE guideline for ME/CFS: The Stakeholders Engagement Workshop – A Report by Dr Charles Shepherd | 17 January 2018
Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.
Independent: Time for Unrest: Why patients with ME are demanding justice | 07 January 2018
A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.
Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018
Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018 Read More »
This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.
Buzzfeed News: A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience | 30 December 2017
A recent scientific trial has led to acrimonious debates over chronic fatigue syndrome, aka ME, and boosted interest in a secretive therapy that some call a “cult” and others call a “miracle”.
The Hippocratic Post: Unrest – a new film about ME | 27 November 2017
The Hippocratic Post: Unrest – a new film about ME | 27 November 2017 Read More »
The following article appeared in The Hippocratic Post, and was written by Rebecca Wallersteiner, on 25th November, 2017. It features comment from Sarah Staples, and Dr Charles Shepherd, from the ME Association.
ME Association Statement: Negative phase III clinical trial result from Norway for Rituximab in ME/CFS | 27 November 2017
“Despite the headline negative finding, we believe that this trial will still provide useful insights and contribute to a better understanding of M.E., and we also have the results from the Cyclophosphamide clinical trial to look forward to. We are very pleased that this knowledgeable, and valued, research team will continue with their work, trying to find answers to the M.E. puzzle.”
We hear from Cara Tomas about her recent study on cellular bioenergetic deficiencies in ME/CFS | 13 November 2017
Cara Tomas is a PhD student working with Professor Julia Newton at the Institute of Cellular Medicine, and her research was featured in the New Scientist last week.
UK ME/CFS Biobank: The importance of patient involvement | 06 November 2017
UK ME/CFS Biobank: The importance of patient involvement | 06 November 2017 Read More »
Published in the Journal Fatigue: Biomedicine, Health & Behaviour,
New Scientist: Blood cells in chronic fatigue syndrome are drained of energy | 04 November 2017
This article appeared in the New Scientist on November
BBC Breakfast with Jennifer Brea and Dr Charles Shepherd | 02 November 2017
BBC Breakfast with Jennifer Brea and Dr Charles Shepherd | 02 November 2017 Read More »
Last Saturday saw Jennifer Brea and Dr Charles Shepherd