Prevention of Future Deaths Report has been issued following the death of a lady with severe ME in 2024
** Trigger Warning: Suicide: Very Upsetting Content ** Debbie Rookes, […]
ME Essential: Winter 2024: Lost and Found
ME Essential: Winter 2024: Lost and Found Read More »
Living with ME/CFS changed my life irrevocably, so much so
Jack Hewitt shapes up for his final four marathons
Jack Hewitt shapes up for his final four marathons Read More »
In a week’s time – on Saturday, 26th July – Jack
Research: Assessing Brain Neurophysiology in COVID-19 Patients with Prolonged Cognitive Fatigue
Yesterday (17.07.25), Cureus published a research article entitled ‘Assessing Brain
Update: UK ME/CFS Biobank Steering Group June 2025
Update: UK ME/CFS Biobank Steering Group June 2025 Read More »
The ME Association (MEA) has invested £850,000 in the UK
The Gordon family have reported that East Sussex Healthcare NHS Trust are preparing to take legal action against Karen
**TW: Upsetting Content** The Gordon Family have posted an unsettling
The Sick Times – Left without care: Many Long COVID clinics are closing down in the U.K.
The Sick Times – Left without care: Many Long COVID clinics are closing down in the U.K. Read More »
“Fewer than half of U.K. Long COVID clinics will stay
The ME Association’s stance on the AHA recommendations around exercise therapy for people with Long Covid
The American Heart Association has endorsed the controversial stance that
MEA defends how we raise money for research, how we spend it and our position on referring unproven claims about recovery programmes to the regulatory authorities
In July, 2025, the following paper, “Chronicity rhetoric in health
Molecular Psychiatry: Brain and muscle chemistry in ME/CFS and long COVID: a 7T magnetic resonance spectroscopy study
A new study provides further evidence of mitochondrial dysfunction and
PNAS: Oxidative stress is a shared characteristic of ME/CFS and Long COVID
PNAS: Oxidative stress is a shared characteristic of ME/CFS and Long COVID Read More »
On July 8th, 2025, PNAS published a new paper titled,
Parliamentary Question on ME/CFS Delivery Plan and Research Funding
Parliamentary Question on ME/CFS Delivery Plan and Research Funding Read More »
On the 10th July, 2025, Ashley Dalton, Under-Secretary (Department of
Funding announcement from the NIHR regarding the treatment or management of Long Covid, ME/CFS and other post infection syndromes
The National Institute for Health and Care Research (NIHR) have
Universal Credit and PIP Bill: What Happened at the Third Reading?
Universal Credit and PIP Bill: What Happened at the Third Reading? Read More »
On Wednesday 9 July, the government’s Universal Credit and Personal
Research: SMPDL3B a novel biomarker and therapeutic target in ME
Research: SMPDL3B a novel biomarker and therapeutic target in ME Read More »
On the 7th July, a research paper entitled ‘SMPDL3B a
Literature Review: T cell exhaustion as a possible driver of post infection fatigue syndromes
Qeios have published an article entitled ‘The Role of T-Cell
Publisher Elsevier have updated the Kumar and Clark Medical Textbook entry on ME/CFS
Publisher Elsevier have updated the Kumar and Clark Medical Textbook entry on ME/CFS Read More »
The Kumar and Clark Medical Textbook has been updated for
Nutraceutical Supplementation Effects on Subjective Fatigue Symptoms in ME/CFS: A Systematic Review
A systematic review, summarising and evaluating the current research findings
NICE release a new Clinical Knowledge Summary (CKS) on ME/CFS
NICE release a new Clinical Knowledge Summary (CKS) on ME/CFS Read More »
The National Institute for Health and Care Excellence (NICE) release a