“Living with ME is like waking up with the worst flu and hangover combined you’ve ever had in your life, every single day.” Nicola Ingram.

“Sometimes the inevitable pain and fatigue is just the price I have to pay to get things done.” Rog Warner.

Helen is doing the best she can to still live her best life. It can be frustrating, upsetting and overwhelming at times, but she’s trying.

“A neurologist even said “ME is not a real disease.” The medics made her doubt herself and feel ashamed.” Clare Norton.

“We want to tell the world about the Real People that suffer because of this Real Disease – day after day, week after week, year after year, and in some of the cruellest cases, decade after painful decade.”

“It is time for egos to be put aside, for the science to be listened to, for patients to be listened to and the Hippocratic Oath to be remembered – first, do no harm.” Clare Norton.

“I now live my life mainly housebound. The same four walls day in, day out, drain any positivity you can try and muster.” Hayley Date.

“At my worst it didn’t feel like much of a life – just an existence waiting for a cure.” Hannah Grundy.

“Winter Hill is a personal and powerful documentary short film by filmmaker Lee Gray.” FilmsShort.

“All we, the ME community, want is fair treatment and a chance for a future.” Jo Moss

John Martin has written 3 children’s books and Just for ME is his first novel. His daughter has suffered from M.E. for 26 years and was his inspiration.

What does this special week mean to you? What issues do you believe should be the focus of ME Awareness Week?

“My M.E. pictures reflect the experience of so many of us. I want us to be visible. Don’t you?”

“We clearly see a difference in the way healthy and chronic fatigue syndrome immune cells process stress.” Dr Ron Davis.

We are proud to announce our first team of people walking to raise funds in Scotland’s Kiltwalk!