ME Association: Professor Manoj Sivan to develop new protocol for dysautonomia in ME/CFS and Long Covid
We hope the protocol when implemented will bring relief to the hundreds of thousands of people who suffer from these very debilitating symptoms
We hope the protocol when implemented will bring relief to the hundreds of thousands of people who suffer from these very debilitating symptoms
America: What’s Wrong With the National Academies’ Long Covid Definition? Read More »
The specificity is rather poor, which translates into inaccurately diagnosing many who do not have Long Covid.
New York Times: New report underscores the seriousness of Long Covid Read More »
An important report from the National Acadamies in America with comparisons to ME/CFS and FM.
Endorsed by UK CRC, DHSC, UKRI MRC, NIHR, and CSO in Scotland.
Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses Read More »
Researchers highlight an overlap of symptoms in Long Covid and ME/CFS studies but further research is urgently needed especially those patients with severe/very severe ME.
ME Association Statement: Improving healthcare for people with ME/CFS and Long Covid Read More »
The ME Association is committed to working with the NHS and social care providers to improve healthcare for people with ME/CFS and Long Covid.
Research: Sex and disease severity‑based analysis of steroid hormones in ME/CFS Read More »
Study found that levels of steroid hormones in were significantly different in ME/CFS…
How many people have ME/CFS in the UK? Read More »
The honest answer is that we just don’t know how many people have ME/CFS in the UK.
“We urgently need to come up with answers to help those struggling with Long Covid feel whole again.”
Research: Working together to find answers to ME/CFS! Read More »
There are 4 workshops taking place this summer for researchers, clinicians and people with ME/CFS.
An incomplete picture: understanding the burden of Long Covid Read More »
An international report examining the impact of Long Covid with recommendations to improve health outcomes.
Westminster Hall Debate: When will the Final Delivery Plan on ME/CFS be published? Read More »
We can now expect the Final Delivery Plan on ME/CFS later this year hopefully.
Research: More than a quarter of people infected by Covid develop Long Covid Read More »
The researchers are calling for yearly Covid-19 vaccinations to be rolled out.
Doctors in Australia still recommend GET despite NICE guidelines.
Does diabetes increase the risk of long COVID? Read More »
Are people with a history of Diabetes more susceptible to Long Covid?
Neurology Today: Are ME/CFS and Long Covid part of the same disorder? Read More »
“We believe these are virtually the same disease…” Avidra Nath NINDS.
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS Read More »
The research found significantly elevated Glutamate and N-acetyl-aspartate levels in Long Covid and ME/CFS…
Science: Long Covid treatment trials and lessons in persistence Read More »
New Long Covid trials aim to clear lingering virus—and help patients in dire need
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…
Physio’s for ME achieve funding success for vagus nerve study! Read More »
Physio’s for ME We are thrilled to announce that we