Kate reviews a popular scheme that provides extra assistance to people with disabilities.
News | The ME Association - Part 19
Make ME Visible Campaign – Mummying and ME | 16 October 2019
The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.
Invisible Illness Week 2019 – Masked, Trapped and Crumbling by Kate Stanforth | 15 October 2019
Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.
The Autumn Issue of ME Essential – The Magazine for members of the ME Association | 14 October 2019
50 pages of ME-related content that we think you will find interesting and useful. It really is an essential magazine!
Make ME Visible Campaign – Invisible Illness Week 2019 | 14 October 2019
Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?
Telegraph: Most people complaining of Lyme disease are actually suffering from chronic fatigue, say experts | 12 October 2019
Following a SMC briefing, many news-media outlets report on the claim that chronic lyme disease is likely to be CFS.
ME Association September Summary of ME/CFS Published Research | 05 October 2019
We’ve updated the central Research Index and feature 12 ME/CFS research studies from September 2019.
MEA Website Survey: The Benefits of Having a Pet | 04 October 2019
This month we’re all about Pets and how much they can mean to someone who is not in the best of health.
Amended Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | 03 October 2019
The influential Cochrane organisation has published an updated review and issued a statement following concerns expressed by the patient community.
ME Association August Summary of ME/CFS Published Research | 03 September 2019
We’ve updated the central Research Index and feature 16 ME/CFS research studies from August 2019.
NICE Guideline Review: Call for Evidence | 02 September 2019
NICE is asking stakeholders for evidence to support the ongoing review. The deadline is 4th October by 5pm.
Canada invests $1.4M in biomedical research to improve the quality of life of people living with M.E. | 23 August 2019
It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome.
Relationship between physiotherapists and people with M.E. is poor but there is potential to improve | 22 August 2019
Physios 4 ME report on the results from the MEA website survey that took place in July.
Establishing Protocols to Assess Mitochondrial Function in ME/CFS by Dr Karl Morten | 21 August 2019
Dr Morten provides additional comment on the recent validation attempt of the Acumen test and we include a detailed report.
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
The Sun: 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed | 15 August 2019
Dr Sarah Jarvis talks The Sun through the main signs your exhaustion could actually be a symptom of ME/CFS.
Top 7 Tips for Claiming Disability Benefits with M.E. by Ann Innes | 14 August 2019
The MEA’s Welfare Rights Adviser provides her top-tips for people with M.E. when applying or renewing ESA and PIP.
The Telegraph: Narrow doors and no hoists: why disabled women can’t have life-saving cervical cancer screening with Jo Moss | 10 August 2019
All women are invited to cervical screening, and all women should be able to have access to a test.
Independent researchers determine mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019
The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.
Severe ME Day: Caring for someone with Severe M.E. by Sarah Boothby | 08 August 2019
Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.