We explain what happened at the recent MRC/NIHR workshop and invite you to complete a survey on research criteria.
News | The ME Association- Part 17
MEA Summary Review: Low Dose Naltrexone (LDN) in ME/CFS | 02 December 2019
We have updated this research review to include a new study from Finland.
“Get Well Soon” – Guest Blog by Louise Shepherd | 22 November 2019
Such small but powerful words – for right and wrong reasons… When there’s no chance of becoming 100% better, hearing or reading them can really drag you down to the dark places of your mind.
Speak Up for M.E. in the General Election: Contact Your Candidates!| 19 November 2019
We have provided a Template Letter you might like to use to contact your candidates ahead of the General Election on 12th December.
What’s in ME purse? Guest blog by Ev Kendall | 11 November 2019
“I’m for the badge because it alerts everyone to the fact you have an issue whether it be M.E. or possibly another illness that is also invisible.”
MRC/NIHR Workshop: The ME/CFS Biomedical Partnership – Genetics and Biomarkers | 07 November 2019
The MRC will host a workshop to help the CMRC with its major bioresource proposal involving 20,000 samples and data from people with M.E.
2020 CMRC Research Conference in Bristol – Early Bird Registration Now Open | 06 November 2019
The CMRC research conference takes place in Bristol on Tuesday 10th and Wednesday 11th March, 2020.
ME Association October Summary of ME/CFS Published Research | 06 November 2019
We’ve updated the free central Research Index and feature 16 research studies from October 2019.
MEA Website Survey: What issues do you want your MP to lobby about after the general election?| 05 November 2019
What are the issues of most concern to you? Please complete the website survey and share your comments.
We Respond to NICE ‘Suspected Neurological Disorders’ Quality Standard | 25 October 2019
Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.
We’re at the Royal College of GPs conference in Liverpool! | 24 October 2019
The RCGP conference is underway and we’re there with Forward ME. Medical student Emilia Allwright has presented her research based on your responses to a recent survey.
MEA Press Release: Vital new research could lay bare the cause of one of world’s cruellest illnesses | 23 October 2019
“The ME Association is delighted to announce that our Ramsay Research Fund has been able to make three major research grants totalling nearly £200,000.”
MEA Summary Review: Differentiating Medical Uncertainty | 21 October 2019
We take a closer look at recent research from America that highlights concerns over inappropriate and harmful labelling and advocates for medicine to adopt a more patient-centred approach to care.
Happy To Move For You… helping invisibly ill people access seats on public transport by Ellie Kime | 21 October 2019
Ellie’s badges help people easily get a seat on public transport without needing to negotiate or feel anxious.
Invisible Illness Week The Sunflower Lanyard Scheme by Kate Stanforth | 18 October 2019
Kate reviews a popular scheme that provides extra assistance to people with disabilities.
Make ME Visible Campaign – Mummying and ME | 16 October 2019
The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.
Invisible Illness Week 2019 – Masked, Trapped and Crumbling by Kate Stanforth | 15 October 2019
Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.
The Autumn Issue of ME Essential – The Magazine for members of the ME Association | 14 October 2019
50 pages of ME-related content that we think you will find interesting and useful. It really is an essential magazine!
Make ME Visible Campaign – Invisible Illness Week 2019 | 14 October 2019
Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?
Telegraph: Most people complaining of Lyme disease are actually suffering from chronic fatigue, say experts | 12 October 2019
Following a SMC briefing, many news-media outlets report on the claim that chronic lyme disease is likely to be CFS.