News | The ME Association- Part 17

We explain what happened at the recent MRC/NIHR workshop and invite you to complete a survey on research criteria.

We have updated this research review to include a new study from Finland.

Such small but powerful words – for right and wrong reasons… When there’s no chance of becoming 100% better, hearing or reading them can really drag you down to the dark places of your mind.

We have provided a Template Letter you might like to use to contact your candidates ahead of the General Election on 12th December.

“I’m for the badge because it alerts everyone to the fact you have an issue whether it be M.E. or possibly another illness that is also invisible.”

The MRC will host a workshop to help the CMRC with its major bioresource proposal involving 20,000 samples and data from people with M.E.

The CMRC research conference takes place in Bristol on Tuesday 10th and Wednesday 11th March, 2020.

We’ve updated the free central Research Index and feature 16 research studies from October 2019.

What are the issues of most concern to you? Please complete the website survey and share your comments.

Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.

The RCGP conference is underway and we’re there with Forward ME. Medical student Emilia Allwright has presented her research based on your responses to a recent survey.

“The ME Association is delighted to announce that our Ramsay Research Fund has been able to make three major research grants totalling nearly £200,000.”

We take a closer look at recent research from America that highlights concerns over inappropriate and harmful labelling and advocates for medicine to adopt a more patient-centred approach to care.

Ellie’s badges help people easily get a seat on public transport without needing to negotiate or feel anxious.

Kate reviews a popular scheme that provides extra assistance to people with disabilities.

The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.

Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.

50 pages of ME-related content that we think you will find interesting and useful. It really is an essential magazine!

Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?

Following a SMC briefing, many news-media outlets report on the claim that chronic lyme disease is likely to be CFS.