BBC News: Daughter’s death ‘could have been avoided’
BBC News: Daughter’s death ‘could have been avoided’ Read More »
Sarah doesn’t blame the trust and said Maeve was cared for by many excellent clinicians. The problem, she said, was system-wide.
The Guardian: ‘Long flu’ study finds flu patients at higher risk of longer-term illness
The Guardian: ‘Long flu’ study finds flu patients at higher risk of longer-term illness Read More »
“We need to stop trivialising viral infections and understand that they are major drivers of chronic diseases.”
BBC News: Why is Covid still flooring some people?
BBC News: Why is Covid still flooring some people? Read More »
Scientists warn Covid is still causing stonking infections that may be worse than before and knock us out for weeks.
New York Times: Reporting on Long Covid taught me to be a better journalist
New York Times: Reporting on Long Covid taught me to be a better journalist Read More »
Ed Yong explains what he has learnt by covering stories about Long Covid & ME/CFS.
The ME Association: Meeting with Ingeus and a request for benefit assessment case studies
Last month Ellie Jones, Welfare Rights Adviser to the ME Association, met with the Director of Health at Ingeus.
The ME Association Annual General Meeting: Chairman’s Statement
The ME Association Annual General Meeting: Chairman’s Statement Read More »
2023 has been a year of change at the ME Association. Change within our staff and our Board of Trustees…
The Times: ‘Hospitals have no services for most severe ME cases, coroner told’
The Times: ‘Hospitals have no services for most severe ME cases, coroner told’ Read More »
Maeve Boothby-O’Neill, the daughter of the Times journalist Sean O’Neill, died 2 years ago after becoming bedbound.
ME Association Research Review: Mortality in ME/CFS
ME Association Research Review: Mortality in ME/CFS Read More »
Malnutrition is the most serious life-threatening complication in those with ME/CFS, especially in very severe cases.
The ME Association and ME Research UK announce funding for a study that aims to create a diagnostic test for ME/CFS
The ME Association and ME Research UK are funding a new study using nanoelectronic testing which could produce a diagnostic marker for people with ME/CFS.
Research: Amitriptyline nearly doubles IBS symptom improvement
Research: Amitriptyline nearly doubles IBS symptom improvement Read More »
In a phase 3 clinical trial, Amitriptyline was superior to placebo as a second-line treatment for IBS in primary care.
The ME Association renews funding arrangement with UK ME/CFS Biobank
The ME Association renews funding arrangement with UK ME/CFS Biobank Read More »
The UKMEB has an excellent international repution and stimulated much research into ME/CFS.
The ME Association announces new post-mortem research partnership with Manchester Brain Bank
The MEA Ramsay Research Fund will be funding detailed examinations of the brain, spinal cord and dorsal root ganglion.
ME Association: The Work Capability Assessment Consultation
ME Association: The Work Capability Assessment Consultation Read More »
ME Association statement and suggestions to respond to the consultation.
ME Association: The Work Capability Assessment: proposed abolition and open consultation
ME Association: The Work Capability Assessment: proposed abolition and open consultation Read More »
An ME Association statement and background to the proposed changes.
Oslo Chronic Fatigue Consortium ‘New Hope’ is “More Unhelpful Nonsense”!
Oslo Chronic Fatigue Consortium ‘New Hope’ is “More Unhelpful Nonsense”! Read More »
ME Association statement about Oslo Chronic Fatigue Consortium research.
America: How one woman’s quest to understand chronic fatigue sparked a scientific breakthrough
Researchers found that a protein was reducing cellular energy production.
America: Distinct immune and hormone responses shed light on Long Covid
America: Distinct immune and hormone responses shed light on Long Covid Read More »
People with Long Covid exhibit different immune and hormonal responses to the Covid-19 virus.
The ME Association Responds to Government Consultation: Interim Delivery Plan on ME/CFS
The ME Association Responds to Government Consultation: Interim Delivery Plan on ME/CFS Read More »
We would like the Final Delivery Plan on ME/CFS to be more encompassing and representative.
The ME Association: A Very Successful Count ME In Campaign!
The ME Association: A Very Successful Count ME In Campaign! Read More »
THANK YOU for supporting the ME Association’s recent Count ME In campaign.
British Medical Journal: How can I support my colleague returning to work with Long Covid?
“Remember that no two people with Long Covid will be