Research: Myalgic Encephalomyelitis is clear to see in the blood
Research: Myalgic Encephalomyelitis is clear to see in the blood Read More »
Simon McGrath provides a summary of important research from Edinburgh.
Research: Replicated blood-based biomarkers for ME/CFS not explained by inactivity
Research: Replicated blood-based biomarkers for ME/CFS not explained by inactivity Read More »
The results from this study “should now dispel any lingering perception that ME is psychosomatic.”
People with myalgic encephalomyelitis and their carers are calling for a reversal of decades of underfunding
Observer Letters 04 August 2024 “Alastair Miller claims there have
Maeve Boothby O’Neill inquest: Doctor had ‘never seen’ ME patient with such severe symptoms
He believed that there were now better arrangements in place for patients with ME within the organisation.
Research Review: Long COVID Is Not a Functional Neurologic Disorder
Research Review: Long COVID Is Not a Functional Neurologic Disorder Read More »
We conclude that considering long COVID as FND is inappropriate…
Building an NHS that’s there for people with Long Covid and ME
Building an NHS that’s there for people with Long Covid and ME Read More »
#ThereForME is a patient- and carer-led campaign calling for an
ME Association: Professor Manoj Sivan to develop new protocol for dysautonomia in ME/CFS and Long Covid
We hope the protocol when implemented will bring relief to the hundreds of thousands of people who suffer from these very debilitating symptoms
America: What’s Wrong With the National Academies’ Long Covid Definition?
America: What’s Wrong With the National Academies’ Long Covid Definition? Read More »
The specificity is rather poor, which translates into inaccurately diagnosing many who do not have Long Covid.
New York Times: New report underscores the seriousness of Long Covid
New York Times: New report underscores the seriousness of Long Covid Read More »
An important report from the National Acadamies in America with comparisons to ME/CFS and FM.
The Guardian: ‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with long Covid
A great article from The Guardian with opinion from Dr Binita Kane on ME/CFS and Long Covid.
Carers UK: Open letter from unpaid carers to the future Prime Minister
Carers UK: Open letter from unpaid carers to the future Prime Minister Read More »
The ME Association is an official sponsor of Carers Week
A new support pack for anyone with ME/CFS going to hospital
A new support pack for anyone with ME/CFS going to hospital Read More »
The pack aims to address the many issues facing people with ME/CFS when they attend hospital.
The Department of Health and Social Care launch ‘Toolkit’ aimed at stimulating research into ME/CFS
Endorsed by UK CRC, DHSC, UKRI MRC, NIHR, and CSO in Scotland.
Editorial: Medical students highlight importance of ME/CFS medical education
Editorial: Medical students highlight importance of ME/CFS medical education Read More »
Medical students at Scottish medical schools were invited to take part in an essay competition on ME/CFS.
NHS England Launches New E-learning Module on ME/CFS!
NHS England Launches New E-learning Module on ME/CFS! Read More »
The new e-learning module was launched at the BACME conference…
The ME Association: ME/CFS and Long Covid at the Disability employment inquiry
The ME Association: ME/CFS and Long Covid at the Disability employment inquiry Read More »
The committee was focused on ‘barriers to work’ which is not an easy subject to talk about…
Parents of children with Long Covid accused of making it up
Parents of children with Long Covid accused of making it up Read More »
“There is a cultural problem that is ingrained within medicine to not believe patients if we can’t explain their symptoms…”
ME Association Statement: Improving healthcare for people with ME/CFS and Long Covid
ME Association Statement: Improving healthcare for people with ME/CFS and Long Covid Read More »
The ME Association is committed to working with the NHS and social care providers to improve healthcare for people with ME/CFS and Long Covid.
Research: Sex and disease severity‑based analysis of steroid hormones in ME/CFS
Research: Sex and disease severity‑based analysis of steroid hormones in ME/CFS Read More »
Study found that levels of steroid hormones in were significantly different in ME/CFS…
Prevalence: How many people have ME/CFS in the UK?
Prevalence: How many people have ME/CFS in the UK? Read More »
The honest answer is that we just don’t know how many people have ME/CFS in the UK.