The minutes from the 10 September APPG meeting are now available on the APPG’s website
The Group first discussed the Delivery Plan, welcoming its release, but highlighting its failure to address many concerns previously raised by charities and people affected by ME experience throughout the consultation process.
The recent EDM, tabled by Tom Morrison MP was also noted before Sonya Chowdhury, Action for ME Chief Executive, provided an update regarding ongoing engagement as part of the Delivery Plan’s implementation.
They then heard directly from three people with lived experience as part of the Severe ME Inquiry. Whilst attendance at the meeting was heavily impacted by TFL strikes and other parliamentary activity, all members of the APPG have received an evidence pack containing a variety of recorded and written contributions from people with severe ME and/or their carers.
Members are now reviewing the evidence pack and the APPG will look to pull together all of the evidence shared as part of the inquiry at its October meeting, before developing a report and subsequent recommendations.
It was also noted that the APPG was yet to receive a response from the letters shared by Jo Platt MP, on behalf of the group, to Patrick Vallance and Minister Dalton.
The APPG would like to once again thank the people with lived experience who provided evidence as part of the Severe ME Inquiry, recognising the importance of their voices being heard, but also the post-exertional impact that likely followed.