LATEST: COVID-19, ME/CFS and the JCVI Priority Vaccination List
LATEST: COVID-19, ME/CFS and the JCVI Priority Vaccination List Read More »
We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.
2021
These boots are made for walking! Joe’s marathon begins at midnight tonight
These boots are made for walking! Joe’s marathon begins at midnight tonight Read More »
After days of training, all that’s left now is his marathon walk of 70 miles
The Vegepa Club comes up winning again for biomedical research into ME/CFS
The Vegepa Club comes up winning again for biomedical research into ME/CFS Read More »
The Vegepa Club and our Ramsay Research Fund have history – stretching back many years,
Covid vaccine priority for people with ME/CFS and the JCVI list – latest on our discussions
We call on the JCVI to give people with ME/CFS a Group 6 priority listing
Lee’s way of beating those winter blues – painting the Blue Planet through FeBLUEary!
Lee’s way of beating those winter blues – painting the Blue Planet through FeBLUEary! Read More »
Lee is painting a Blue Planet picture a day for us during February. Do have a look at them!
Fast, friendly and fantastic – GiveaCar is the service that deals with your old banger
Fast, friendly and fantastic – GiveaCar is the service that deals with your old banger Read More »
GiveaCar give us a seamless service. Please use them when you want to get shot of your old car.
His boots are made for walking! Joe Rowsell takes on 24-hour challenge to honour his mum
His boots are made for walking! Joe Rowsell takes on 24-hour challenge to honour his mum Read More »
Joe will be stepping out 70 miles near the Brecon Beacons to raise money for the ME Association
Don’t judge a book by its cover! Invisible illness champ Jessica says it’s the same with people
People are asked to watch their language when faced by things they don’t understand
What drugs are being developed for the treatment of ME/CFS?
What drugs are being developed for the treatment of ME/CFS? Read More »
There’s a review of possible new drug therapies for ME/CFS in the journal, ‘Pharmcological Research’.
We chase Chief Medical Officer and JCVI for answers to our urgent vaccine priority email
We chase Chief Medical Officer and JCVI for answers to our urgent vaccine priority email Read More »
We want answers from the UK authorities to some of the key questions of our times.
BBC Radio Cornwall to host live discussion with our Dr Shepherd on Monday
BBC Radio Cornwall to host live discussion with our Dr Shepherd on Monday Read More »
45 minutes of lively discussion about the overlaps between ME/CFS and Long Covid
Think of us please when you want to say goodbye to your car
Think of us please when you want to say goodbye to your car Read More »
Tell us your favourite old banger story. And, if it’s anything like Basil Fawlty thrashing his car with a bunch of twigs… so much the better.
MEAW 2021: Health and Social Care Awareness Campaign
MEAW 2021: Health and Social Care Awareness Campaign Read More »
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
The International ME/CFS Family Impact Study
The International ME/CFS Family Impact Study Read More »
Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.
Guardian: The NHS must learn from its mistakes with other post-viral conditions such as ME/CFS – more research is vital
George Monbiot spoke with Dr Charles Shepherd before publishing a very good article about the lessons that should be learnt from ME/CFS for those now suffering from Post or Long-Covid.
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Parliamentary debate on Long-Covid: What should be learned from ME/CFS? Read More »
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
ME Awareness Week: let’s celebrate as a community but keep it smart – and apart!
ME Awareness Week: let’s celebrate as a community but keep it smart – and apart! Read More »
Please #GoBlue4ME with us. It’s an easy way to join ME Awareness Week 2021.
‘Full-up’ signs in place as medical students let us unpack the mysteries of ME/CFS
‘Full-up’ signs in place as medical students let us unpack the mysteries of ME/CFS Read More »
We were delighted to receive this invitation to speak to the Cambridge University General Practice Society.
A lockdown quiz took Ja to this extreme cycling challenge
A lockdown quiz took Ja to this extreme cycling challenge Read More »
Ja Bowie hopes to take on one of amateur cycling’s most extreme challenges in May 2021.
The lockdown good night in that became Claire’s huge quiz party
The lockdown good night in that became Claire’s huge quiz party Read More »
Hundreds of people have attended Claire’s virtual quiz nights since she launched them last year.