The International ME/CFS Family Impact Study

By Dr Nina Muirhead

International ME/CFS Family Impact Study

Dr Nina Muirhead, NHS surgeon, ME/CFS patient, Chair CMRC Medical Education Group

The opportunity to take part in this international research study is still available.

The deadline for participation is 31 March 2021.

The research will examine the impact of ME/CFS on the quality of life of both patients and their family members,

This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients.

There are two questionnaires in the survey, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return.

People with ME/CFS piloting the survey found each questionnaire only took about 5 minutes to complete.

  • If you are accessing the survey for the first time, please use the link: https://redcap.link/MECFSFamilyImpactStudy
  • If you have started the study but lost the link to return, please e-mail MEFROM16study@cardiff.ac.uk to be given your unique access code (please note this may take a few days).
  • If you have a family member who is still due to participate please could you let them know that the closing date is the 31 March 2021.
  • If you have already participated thank you for your participation, please do not complete the survey more than once.
Please take the survey!

Please share widely to encourage others to participate.

We have reached our initial goal of 500 fully completed surveys and with your help we hope to reach a new target of 1000 complete sets of data.

The greater the reach of this survey the more we can improve international understanding of how ME/CFS impacts patients and their family members.

Thank you and best wishes,

Dr Nina Muirhead and the Study Team at Cardiff University, United Kingdom.

The ME Association

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