A petition that's touching many a raw nerve about claims made in the PACE Trial that cognitive behaviour therapy and graded exercise are effective treatments for ME/CFS has gathered well over 10,000 signatures since it was published about a fortnight ago.
The petition – launched by the #MEAction advocacy group founded by Jennifer Brea – calls on two journals, the Lancet and Psychological Medicine, to retract contentious claims about recovery and to give independent researchers access to the anonymised raw data for the purpose of verification.
#MEAction says the published results from the £5m trial – the biggest of its type in the world – have hugely influenced medical practice and media attitudes towards the illness round the globe and quotes Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine at University College London, who said:
“All the issues with the trial are extremely worrying, making interpretation of the clinical significance of the findings more or less impossible”.
One of our press releases, We challenge the PACE Trial follow-up report in today's Lancet Psychiatry | 28 October 2015, is also cited in the #MEAction statement.
THE PETITION IS AVAILABLE TO SIGN HERE.