Discussing the new law that allows a ‘named person’ for every child in Scotland | BBC 1 ‘Sunday Politics’ | 29 June 2014
Lesley Scott puts the Tymes Trust case against – in this well-argued programme on BBC Scotland
June 2014
We need your views on how the DWP can help people with ME/CFS get back into work – if they want to do so | 27 June 2014
We can’t do a Homer! Dr Shepherd needs some good ideas for his DWP meeting on July 3.
TGI Friday! Our weekly round-up of recently published ME/CFS research abstracts and related items | 27 June 2014
One report this week – a marathon runner’s internal injury misdiagnosed as chronic fatigue syndrome.
Parliamentary Question | are ME/CFS patients being denied their own choice of consultant? | 24 June 2014
The Countess of Mar rejoined the ME/CFS ‘awkward squad’ when she asked this corker of a question.
Lift off for the ‘Ball with no bounce’ | Andy Beaumont premieres his new song | Anglesey, Friday July 11
And a charity music night in aid of the ME Association!
Blue Sunday tea party put forward for award | Stamford Mercury | 20 June 2014
Blue Sunday tea party put forward for award | Stamford Mercury | 20 June 2014 Read More »
From the Stamford Mercury, 20 June 2014 (Story by Kerry
‘Shock, anger and concern from people with ME/CFS’ | we write to the Essex CFS service | 20 June 2014
Letter expressing concern about views that appeared in the British Medical Journal this week.
ESA sickness benefit is ‘failing’, government documents say | BBC News | 20 June 2014
ESA sickness benefit is ‘failing’, government documents say | BBC News | 20 June 2014 Read More »
From the BBC News website, 20 June 2014. The key
TGI Friday! Our weekly round-up of recently published research abstracts and related items | 20 June 2014
From Journal of Health Psychology, 8 June 2014 (E-published before
Parliamentary Question | have there been discussions about potential improvements? | 17 June 201
Have there been discussions with the BMA and the Royal Colleges about potential treatments?
All Party Parliamentary Group on ME | notice of AGM to be held on 1 July 2014
All Party Parliamentary Group on ME | notice of AGM to be held on 1 July 2014 Read More »
Notice of the obligatory meeting to enable the APPG to be kept alive on the Parliamentary register.
The debate about an ME/CFS post-mortem and tissue bank rumbles on | BMC Research Notes | 18 June 2014
From BMC Research Notes, 18 June 2014. Download of full
Dublin Marathon – join our runners Jonny and Gareth in this great event on 27 October 2014.
We’ve got one guaranteed place left – it could be yours for a £30 registration fee and promise to raise at least £300.
‘ME: one third of patients ‘wrongly diagnosed’ | Daily Telegraph | 17 June 2014
‘ME: one third of patients ‘wrongly diagnosed’ | Daily Telegraph | 17 June 2014 Read More »
Today’s page 1 story from the Daily Telegraph, a link to the report in BMJOpen and comment from us.
Free entry to the patients’ session at the Research Collaborative conference – thanks to the MRC
Wills Hall in Bristol – venue for the patients’ session on September 1.
‘State guardian stood by as police called to ME sufferer’s home’ | Scottish Sunday Express | 15 June 2014
From the Scottish Sunday Express, 15 June 2014. Story by
‘If an ME sufferer looks fine, the school assumes they are’ | Daily Telegraph | 14 June 2014
From the Daily Telegraph, 14 June 2014. After years struggling
Tymes Trust announce they support court action against ‘Named Person’ scheme for Scotland | 13 June 2014
The Young ME Sufferers Trust (Tymes Trust) announced today that