Survey launch (and radio interview) to support Oxfordshire campaign for better children’s ME/CFS services | 31 October 2013

Planning for better NHS children’s services in Oxfordshire took a step forward today with the announcement by the county’s main support group for people with ME/CFS that they have set up a survey to obtain detailed local views at http://omega.webform.com/

The group, OMEGA, found a hunger for a decent referral service when six out of 10 GPs in the county responded to an initial questionnaire last year. The local NHS then set up their own group involving OMEGA to plan better treatment services for children with ME/CFS.

One revealing finding was that over quarter of GPS were unaware that the county already has a community-based adult referral service called OCCMET at the Orchard Health Centre in Cope Road, Banbury.

Pat Williams from OMEGA said today: “So that OMEGA can represent young patients, we have a questionnaire that we would like parents and the young people to fill in (no names will be used).

“You do not need to be members of OMEGA or live in Oxfordshire; information from those counties surrounding Oxfordshire would be particularly helpful. We would also like to hear from young adults who had ME as children.”

Priscilla Kew, from OMEGA, was interviewed by Malcolm Boyden on his BBC Radio Oxford show this week. Listen to the item HERE. Move the cursor to the start of the interview which is 9 minutes from the start of the programme. It continues for 14 minutes.


We reported the results of last year’s OMEGA survey HERE.


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