‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
Symptoms
“If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020
Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020 Read More »
“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020 Read More »
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Huffington Post: Covid-19 Is Leaving People With Serious Fatigue – What Can You Do About It?
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
Coronavirus and ME by Rebecca Smith | 07 May 2020
Coronavirus and ME by Rebecca Smith | 07 May 2020 Read More »
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019 Read More »
Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?