The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”