The ME Association ME/CFS Research Round-up
In the last week, 5 new studies have been published. We look at the prevalence of perineural cysts and multi-omics revelations in ME/CFS.
Recovery
The ME Association ME/CFS Research Round-up
This week 6 new studies about ME/CFS and Fibromyalgia were published including a small study from Canada that made the news…
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
Ian Lazonby was a vet and a lawyer before glandular fever as an adult led to M.E. He talks about his experience with the condition, how he has recovered to an extent, and has accepted M.E.
Virginia Water Magazine: Why aren’t people getting better from Covid-19? With Dr Charles Shepherd
Dr Charles Shepherd wrote a piece for The Virginia Waters Magazine where he shared his insights into Post-Long Covid-19.
Early Day Motion: Researching and supporting people with long Covid-19 symptoms
Carol Monaghan has tabled an Early Day Motion that we would like you to encourage your own MPs to support. A template email is included for you to use.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
The ME Association End of Week Research Round-up
We highlight 3 studies from last week’s 6 ME/CFS research publications.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
ME, Myself and I: Caution and Controversy
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020
“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
MEA Website Survey: What has happened to your health as a result of ME over last 12 months? | 03 December 2019
In this month’s website survey we’re asking how your M.E. has affected your health over the last year.