It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association has given a cautious welcome to the BACME position statement, but still has a number of concerns and questions.
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
The latest meeting including an excellent discussion with Sean O’Niell about ways in which ME might feature more often in the media.
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.