“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association appeared in several media publications at the weekend sharing opinion about Long-Covid and the proposed new specialist clinics.
We have a new free leaflet on this year’s Flu Vaccination, and a Website Poll asking you about any reactions you might have had to the vaccine.
Dr Shepherd answers a question about the pneumonia vaccine and provides the information you need to make an informed decision.
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
We will shortly be updating our free leaflet on the Flu Vaccine and M.E. But we hope this information proves helpful in the meantime.
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.