Forward-ME: NICE issue clarification about new Chronic Pain Guideline & expand on statement for GET in Post-Covid-19
NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.
National Institute Health and Care Excellence
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
Severe ME Week: How might healthcare be improved?
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
The DecodeME Genetics Study: Letters to The Times
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The New NICE Clinical Guideline on ME/CFS to be Published in April 2021
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
New ME Association Leaflet: Is ME a neurological disease? | 19 February 2020
We summarise all the key clinical, research and political evidence supporting a neurological classification for M.E.
New NICE Guideline on ME/CFS delayed until end 2020| 06 December 2019
Publication of the new clinical guideline on ME/CFS is delayed until 9th December 2020.
We Respond to NICE ‘Suspected Neurological Disorders’ Quality Standard | 25 October 2019
Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.