In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
Tag: Myalgic Encephalomyelitis
Situations Vacant: We want a Webmaster to join the ME Association team!
The ME Association is recruiting for a new Webmaster – someone who can look after the website and website shop and grow its online presence…
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
What do you think about the new NICE Clinical Guideline on ME/CFS?
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association ME/CFS Research Round-up
We report on 5 new research studies and highlight the discovery of bioenergetic defects in the skeletal muscle of people with ME/CFS.
New MEA Leaflets: Prognosis & Quality of Life, Disability Classification & Illness Severity
The new leaflets explain what might be expected from a diagnosis of ME/CFS and how the illness is classed as a disability by the UK Government.
Are you confused by the latest Covid-19 Lockdown and the restrictions now in place around the UK?
We attempt to summarise the situation in England, Scotland, Northern Ireland and Wales as it relates to people with ME/CFS.
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
The ME Association Cook Book!
‘Cooking for Me’ is a 84-page, full colour cook book, with a wide range of recipes that have been tried and tested by people with M.E. It would make a terrific Christmas present!
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
Ian Lazonby was a vet and a lawyer before glandular fever as an adult led to M.E. He talks about his experience with the condition, how he has recovered to an extent, and has accepted M.E.
Sarah returns to the beginning for her ‘Super Six’ challenge for the ME Association
Sarah Elsby has begun her impressive walking challenge in support of her mother who has M.E. Please donate and help the ME Association do more for this vulnerable community.
ME Association response to BACME Position Statement on the Management of ME/CFS
The ME Association has given a cautious welcome to the BACME position statement, but still has a number of concerns and questions.
New ME/CFS Medical Education Initiative Launched in Scotland
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
Virginia Water Magazine: Why aren’t people getting better from Covid-19? With Dr Charles Shepherd
Dr Charles Shepherd wrote a piece for The Virginia Waters Magazine where he shared his insights into Post-Long Covid-19.
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
ME Association Leaflet: The Flu and Pneumonia Vaccines 2020 – 2021 & Website Poll of Flu Vaccine Reactions in ME/CFS
We have a new free leaflet on this year’s Flu Vaccination, and a Website Poll asking you about any reactions you might have had to the vaccine.
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.