Tag: ME/CFS

“The people who have been shouting about M.E. and CFS for the last 20 years are suddenly being heard.”

“I want to assure you that we are committed to vaccinating according to need, and you will not be left out or forgotten in this process.”

“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”

We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.

We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.

It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.

Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.

George Monbiot spoke with Dr Charles Shepherd before publishing a very good article about the lessons that should be learnt from ME/CFS for those now suffering from Post or Long-Covid.

We want to hear your views about having the Covid-19 vaccination and we’d welcome your feedback if you have already had the vaccine.

Dr Shepherd discusses the Covid-19 vaccination programme and issues relevant to people with ME/CFS

The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.

We have published a new leaflet to help people who want to claim early retirement on the grounds of ill-health because of ME/CFS.

We take issue with an editorial about the long-term effects of Long COVID in this weekend’s edition of The Lancet.

Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust, Amersham Hospital, Whielden Street Extracts Re: Long covid: doctors must assess and investigate patients properly Dear Editor, I strongly echo this sentiment from my long COVID colleagues about assessing and investigating patients properly and would like to add that doctors must also diagnose patients properly. […]

by Dr Charles Shepherd, Medical Adviser, ME Association With the start of vaccination against COVID-19 occurring this week, we are receiving queries about where people with ME/CFS will be on the priority list. The Joint Committee on Vaccination and Immunisation (JCVI) has produced a list of different groups of people in the order that they […]

Please complete this quick survey to help improve international understanding of how ME/CFS impacts patients and family members.

We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.

There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…

ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!

We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…