Tag: ME/CFS

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.

We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.

The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.

The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.

Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.

While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.

After many years of fluctuating neurological conditions in 2018 my health changed for the worse.

There were two new research publications this week, and we’ve updated the MEA Research Index.

“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”

The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.

“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”

“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.

We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.

“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.

We invest in biomedical research but need your support so that we can do more to determine the cause(s) of M.E. and help develop effective treatments.

The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.