The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
For ME Awareness, the ME Association will be featuring stories from people with M.E. every day throughout May.
Severely disabled woman told moving from mobility chair to sofa suggested she could walk 200 metres unaided.
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
The MEA’s Welfare Rights Adviser provides her top-tips for people with M.E. when applying or renewing ESA and PIP.
We are delighted that Gary Burgess has recorded a special episode that considers the Real impact of Severe M.E. with Jo Moss and Ann Innes.
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
Severe M.E. Day is approaching in August, and we are asking you to share your stories and experiences.