NHSE Long Covid collaboration: Assessment Tool Testing
The ME Association has been part of a NHS England …
NHSE Long Covid collaboration: Assessment Tool Testing Read More »
chronic fatigue syndrome
MEAW21: Focus on health & social care and a new website poll
For ME Awareness Week 2021 we will be discussing health …
MEAW21: Focus on health & social care and a new website poll Read More »
ME Essential Magazine: Spring Issue now available!
The members magazine is packed full of content relating to ME/CFS – news, research, interviews, medical information, Ask the Doctor, letters, tips, Real Lives, Relationships, Covid-19 and the new NICE clinical guideline!
Secretary of State for Health, Matt Hancock, on ME/CFS & Covid Vaccine Priority
“I want to assure you that we are committed to vaccinating according to need, and you will not be left out or forgotten in this process.”
ME and My Family – A Husband’s View of ME/CFS
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
Covid Vaccinations and ME/CFS: Community Feedback!
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
LATEST: COVID-19, ME/CFS and the JCVI Priority Vaccination List
We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.
MEAW 2021: Health and Social Care Awareness Campaign
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
The International ME/CFS Family Impact Study
Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
MEA Monthly Poll: Will you have the COVID-19 vaccine?
We want to hear your views about having the Covid-19 vaccination and we’d welcome your feedback if you have already had the vaccine.
Free Leaflet: Covid-19 Vaccine Update by Dr Charles Shepherd
Dr Shepherd discusses the Covid-19 vaccination programme and issues relevant to people with ME/CFS
Thank you for helping with our formal response to NICE!
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
New Leaflet: Pensions – obtaining an ill-health pension, prognosis & permanency in ME/CFS
We have published a new leaflet to help people who want to claim early retirement on the grounds of ill-health because of ME/CFS.
New! ME/CFS Family Impact Survey by Dr Nina Muirhead & Cardiff University
Please complete this quick survey to help improve international understanding of how ME/CFS impacts patients and family members.
We demand changes to ‘Observer’ article
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
Covid-19 Vaccine Developments & ME/CFS
There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…
ME Essential Magazine & the Christmas Supplement will be with Members very soon!
ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
ME Association Covid-19 & ME/CFS Free Range of Leaflets
We have updated the range of free leaflets about Covid-19/ME/CFS and the current restrictions and include a new leaflet aimed at Students…