It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Tag: chronic fatigue syndrome
The International ME/CFS Family Impact Study
Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
MEA Monthly Poll: Will you have the COVID-19 vaccine?
We want to hear your views about having the Covid-19 vaccination and we’d welcome your feedback if you have already had the vaccine.
Free Leaflet: Covid-19 Vaccine Update by Dr Charles Shepherd
Dr Shepherd discusses the Covid-19 vaccination programme and issues relevant to people with ME/CFS
Thank you for helping with our formal response to NICE!
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
New Leaflet: Pensions – obtaining an ill-health pension, prognosis & permanency in ME/CFS
We have published a new leaflet to help people who want to claim early retirement on the grounds of ill-health because of ME/CFS.
New! ME/CFS Family Impact Survey by Dr Nina Muirhead & Cardiff University
Please complete this quick survey to help improve international understanding of how ME/CFS impacts patients and family members.
We demand changes to ‘Observer’ article
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
Covid-19 Vaccine Developments & ME/CFS
There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…
ME Essential Magazine & the Christmas Supplement will be with Members very soon!
ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
ME Association Covid-19 & ME/CFS Free Range of Leaflets
We have updated the range of free leaflets about Covid-19/ME/CFS and the current restrictions and include a new leaflet aimed at Students…
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
Situations Vacant: We want a Webmaster to join the ME Association team!
The ME Association is recruiting for a new Webmaster – someone who can look after the website and website shop and grow its online presence…
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
What do you think about the new NICE Clinical Guideline on ME/CFS?
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
The ME Association ME/CFS Research Round-up
We report on 5 new research studies and highlight the discovery of bioenergetic defects in the skeletal muscle of people with ME/CFS.
New MEA Leaflets: Prognosis & Quality of Life, Disability Classification & Illness Severity
The new leaflets explain what might be expected from a diagnosis of ME/CFS and how the illness is classed as a disability by the UK Government.