NHSE Long Covid collaboration: Assessment Tool Testing
NHSE Long Covid collaboration: Assessment Tool Testing Read More »
The ME Association has been part of a NHS England […]
chronic fatigue syndrome
Parliamentary debate on Long-Covid: What should be learned from ME/CFS?
Parliamentary debate on Long-Covid: What should be learned from ME/CFS? Read More »
Carol Monaghan raised awareness of the similarity in symptoms and management of Long-Covid and ME/CFS in the recent debate in parliament.
We demand changes to ‘Observer’ article
We demand changes to ‘Observer’ article Read More »
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…” Read More »
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS Read More »
The new NICE guideline has removed graded exercise as a recommended management option…
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
New ME/CFS Medical Education Initiative Launched in Scotland
New ME/CFS Medical Education Initiative Launched in Scotland Read More »
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
Virginia Water Magazine: Why aren’t people getting better from Covid-19? With Dr Charles Shepherd
Dr Charles Shepherd wrote a piece for The Virginia Waters Magazine where he shared his insights into Post-Long Covid-19.
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid
NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid Read More »
Dr Charles Shepherd comments on the decision in England and Scotland to produce a new guideline on Post/Long-Covid Management.
Potential research into Long-Covid and ME/CFS at the ME Biobank
Potential research into Long-Covid and ME/CFS at the ME Biobank Read More »
The ME Biobank team with Dr William Weir are hoping to conduct research into Post-Covid and ME/CFS. Please register your interest in taking part.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it! Read More »
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise Read More »
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
The Times: Warning over conflicting medical advice to coronavirus recovery patients Read More »
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd Read More »
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.