The ME Association is funding a study led by Prof Sarah Tyson (who also has ME) from the University of Manchester (as pictured), to develop a clinical assessment toolkit in collaboration with people with ME and clinicians in NHS ME/CFS specialist services.
Many thanks to the thousands of you who have supported the clinical assessment toolkit project. We are now entering the final stages of the data collection, which is a busy time!
Professor Sarah Tyson
The final stage of the research is to develop an assessment of ME/CFS symptoms, called The Index of ME Symptoms (TIMES) by working with people with ME/CFS and clinicians in specialist services.
We have completed the initial analysis for the TIMES, which assesses symptomology and we have made quite extensive revision in the light of that analysis and your feedback.
It is now much shorter and simpler with just one question per symptom, although there are still quite a lot of symptoms, as we need to be comprehensive. Therefore, we would now like to double-check that the revised version provides the robust data that we expect it to.
Please could you help by completing the following survey
N.B. We only need a smaller number of participants (250) for this analysis, so we will close the survey once we have reached this number, which will probably be in a couple of weeks. Please be aware that there will be a couple more surveys coming in the next few weeks.
If you have any questions or comments, please contact Prof Sarah Tyson, the Chief Investigator at Sarah.tyson@manchester.ac.uk
Further Information:
- ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services ┃May 2023
List of previous surveys (closed):
- Patient Reported Outcome Measures (PROMs) in ME/CFS ┃April 2024
- Patient Reported Experience Measure for ME (PREM-ME) (Facebook) ┃July 2024