50 pages, packed full of interesting stories, news, research, campaigns, fundraising and medical information. There is nothing quite like ME Essential!
Marion Michell talks about her friend Meg, who took her own life after a long battle with severe M.E.
Rosie first suffered ME symptoms at the age of nine when she contracted a viral infection, but failed to recover from it.
Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018 Read More »
Have you ever laid in bed and felt so ill that you truly thought you were going to die?
The ME Association is going BLUE for ME Awareness Week 2018 and we’re also focusing on issues relating to employment and education.
ME Association March Summary of ME/CFS Published Research | 09 April 2018 Read More »
The monthly summary of ME/CFS research publications for March 2018.
The Countess of Mar writes on behalf of Forward ME to the Science Media Centre asking for a retraction of inaccuracies in their ‘factsheet’ on ME/CFS.
Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.
There are substantial gaps in our knowledge of the impact of this complex disease, but the new ‘European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome mission is to address these.
Lauren hopes to display the completed blankets in Coventry Cathedral during ME Awareness Week before donating them to people with severe M.E.
The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018 Read More »
A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.
“Forced exercise above very low levels characteristically incapacitates most patients.”
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’
Members of the South Sefton ME/CFS Support Group and Chester MESH were were able to hand out leaflets and copies of the ME Association guide to clinical issues to attendees.
“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.
‘He just wants to be with his mum – I’m so full of guilt. I’m supposed to be his mum and I can’t even see him’.
The CMRC refocuses its research strategy, welcomes individuals with M.E. onto its executive, and Professor Chris Ponting replaces Professor Esther Crawley as Deputy Chair.
ITV journalist Gary Burgess tells David Edbrooke how being diagnosed with M.E. drove him to the depths of despair.
ME Association Website Survey: Pain Management in M.E. | 05 March 2018 Read More »
We are using this month’s website survey to find out what people with M.E. find to be the two most effective forms of pain relief.
