NICE cautions against using graded exercise therapy for patients recovering from COVID-19
GET may not be suitable for treating post-covid syndrome according to NICE. This BMJ article explores the issue with comment from Prof. Paul Garner.
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
America’s top covid doctor turns ME/CFS into a subject for general discussion as the pandemic deepens
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ Read More »
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd
BBC Spotlight: Covid-19 and Post-Viral Fatigue Syndrome with Dr Charles Shepherd Read More »
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
MRC: Largest Genetic Study into ME is Launched!
MRC: Largest Genetic Study into ME is Launched! Read More »
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
The DecodeME Genetics Study: Letters to The Times
The DecodeME Genetics Study: Letters to The Times Read More »
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Patients, Scientists, and Advocates Celebrate £3.2m Funding for DecodeME, the Largest Ever ME/CFS DNA study!
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Help Advance M.E. Research with an Application to the JLA Priority Setting Partnership
Help Advance M.E. Research with an Application to the JLA Priority Setting Partnership Read More »
Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!
Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness | 19 June 2020
“By adopting this resolution, Parliament gives voice to patients’ concerns and supports their legitimate requests for greater awareness and funding for research.”
Physios for M.E. throw down a challenge to their profession in their first podcast | 12 June 2020
Four physiotherapists who became profoundly disturbed by the way their profession was failing to help people with M.E. get better spoke directly to 59,000 colleagues and allied health professionals in their first-ever podcast this week.
These people have been sick with coronavirus for more than 60 days – doctors don’t know why | Washington Post | 11 June 2020
While the majority of people with mild illness recover completely in 14 days, doctors say they’re seeing a small percentage like Montano who remain sick for many weeks, or even months.
Scientists call for more European research into ME/CFS | European ME Coalition statement | 10 June 2020
14,000 people have signed this petition to the European Parliament demanding ME/CFS research.
Physiotherapists taught three little words for the care of people with Post-Viral Fatigue Syndrome | 3 June 2020
Rest, Nutrition and Sleep – should be new norm working with patients with PVFS, physios urged.
“Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”