“I was an adrenaline junkie who had done three skydives – now I can’t work, spend weeks in bed and am unable to do anything,”
It is hoped that the more signatures this new EDM attracts, the greater the chance of an actual debate in parliament.
Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
I had just finished my GCSEs when I got ill. I noticed I was getting worn out uncharacteristically quickly.
Dr Shepherd says the problem with GET is that it’s too rigid and pushes patients too far.
ME Awareness Week: Showing the true face of M.E. – The Real M.E. Campaign | 08 May 2018 Read More »
People with M.E. are demonstrating they possess the confidence to be seen and help raise awareness of M.E.
ME Association April Summary of ME/CFS Published Research | 07 May 2018 Read More »
This month-end summary reveals abstracts from ME/CFS research published in April 2018.
“In the workplace, most managers genuinely want to help. But, due to lack of information and guidance about M.E. they can make mistakes.”
Ready, Steady, Go! Jane starts the blue madness of ME Awareness Week | 07 May 2018 Read More »
“I have done this in aid of the ME Association who do a vital job raising awareness of M.E. and supporting those with the condition.”
“Graded exercise therapy mistakenly assumes that ME/CFS fatigue and disability result from inactivity and deconditioning.”
“I was still mobile at the beginning but my health continued to deteriorate due to a lack of treatment and support,” Jo Moss.
Our focus on employment and education issues continues today with a new survey on education.
ME Awareness Week: BBC Newsbeat Documentary – M.E. And Me | 04 May 2018 Read More »
This BBC Newsbeat documentary will be available on iPlayer from 6.00am on Tuesday, 8th May.
Pippa says that people simply don’t understand about living with a disability like M.E.
Joan McParland found herself bed bound due to the debilitating, energy sapping condition ME, but she is now helping others with the illness to campaign for an improvement in services.
Fundraising Feature: Beautifying Wheelchairs for M.E. | 01 May 2018 Read More »
Ellie has generously offered to make a donation to ME Association for each design she sells.
‘Blowin’ in the wind’ a song for M.E. by Robert Saunders | 30 April 2018 Read More »
This is my arrangement of Blowin’ in the Wind with alternative lyrics, performed by M.E. patients and their carers from around the world.
We have made several leaflets available as free downloads to support efforts to raise awareness of employment and education issues.
The Conference will take place in Burgess Hill on Saturday 12th May starting at 2.00pm.
Lee knows what it is like trying to study and to work with M.E. And this is what the ME Association will be focusing on in ME Awareness Week.
