The CMRC refocuses its research strategy, welcomes individuals with M.E. onto its executive, and Professor Chris Ponting replaces Professor Esther Crawley as Deputy Chair.
ITV journalist Gary Burgess tells David Edbrooke how being diagnosed with M.E. drove him to the depths of despair.
ME Association Website Survey: Pain Management in M.E. | 05 March 2018 Read More »
We are using this month’s website survey to find out what people with M.E. find to be the two most effective forms of pain relief.
Peebles Hogmanay Torchlight Procession nets over £1,200 for charity | 05 March 2018 Read More »
The money will be split between three charities, the ME Association, Action for ME and Smile for ME.
This survey is for all conditions which present with recognisably neurological symptoms, whether or not these are accepted or catered for in current neurological services.
ME Association February Summary of ME/CFS Published Research | 28 February 2018 Read More »
We have updated our Index to Published ME/CFS Research and here provide an overview of the research that has been published during the month of February.
We want to hear from anyone who has a recent example of a medical assessor expressing inaccurate or even sceptical/hostile opinions about ME/CFS.
All Party Parliamentary Group (APPG) on Disability Summary of
Emma Jenkins has had M.E. for around 20 years. She tells us that her journey of recovery is far from over, but she’s much better than she was. Hers is another inspiring tale of patience, courage, and a determination not to be beaten.
Supporters who twirled the evening away during a Valentine dance at the Heacham public hall on Saturday night fulfilled a dream for the event’s organiser.
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
NHS Personal Health Budgets and NHS England Survey | 20 February 2018 Read More »
We review what we know of NHS Personal Health Budgets and ask whether people with M.E. are making use of what appears to be a very useful resource.
Fundraising Feature: Can we help Lauren make an exhibition for M.E.? | 20 February 2018 Read More »
A HUGE thank you to everyone who has kindly supported Lauren Childs’s call for knitted squares for her All about ME Knitathon project. Her aim now is to exhibit the blankets she has been making…
ME Association Index of Published ME/CFS Research | 19 February 2018 Read More »
This is an A-Z index of the most important research studies (and selected key documents and articles), listed by subject matter, that have been published on ME/CFS.
There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.
A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.
NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018 Read More »
NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.
Family Doctor: ME/CFS What Every Family Physician Needs to Know | 14 February 2018 Read More »
This authoritative article appears in the current issue of Family Doctor and was written by Mary Dimmock, Susan Levine, MD, and Terri L. Wilder, MSW.
A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.
