Meeting with Minister raised important concerns about welfare benefits for people with ME | 26 June 2019
This is a report following the recent meeting with Justin Tomlinson. Thank you to everyone who responded to our request for information.
Welfare
Forward ME: ‘People with ME do NOT have to undergo psychological therapy’ | 24 June 2019
Forward ME: ‘People with ME do NOT have to undergo psychological therapy’ | 24 June 2019 Read More »
These are the minutes from the Forward ME meeting held in May 2019.
Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019
“The results show clearly that cognitive behavioural therapy and graded exercise therapy are unsuitable treatments or management approaches for ME/CFS.”
MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018
MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018 Read More »
This MEA press release summarises some of the main points from the Parliamentary debate on M.E.
The complete Ministerial response from the Parliamentary debate on M.E. treatment and research in Westminster Hall | 22 June 2018
A full transcript of the Ministerial response to the three-hour landmark debate on M.E. in Parliament.
ReMEmber Annual Conference with Dr Charles Shepherd and Dr Amolak Bansal is open to the general public | 27 April 2018
The Conference will take place in Burgess Hill on Saturday 12th May starting at 2.00pm.
Public consultation on PIP results in DWP pledge to record all assessments | 23 April 2018
“Labour will replace this failing system with personalised, holistic support, responsive to individual needs.” Margaret Greenwood MP.
With its’ Focus on ME Awareness Week, the Summer Issue of ME Essential is one you’ll want to read! | 20 April 2018
50 pages, packed full of interesting stories, news, research, campaigns, fundraising and medical information. There is nothing quite like ME Essential!
ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Feedback Request: PIP Medical Assessments – Ahead of meeting tomorrow with the CMO from Capita at the House of Lords | 27 February 2018
We want to hear from anyone who has a recent example of a medical assessor expressing inaccurate or even sceptical/hostile opinions about ME/CFS.
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
‘Having a pet has been the best thing for M.E.’ | 23 November 2017
‘Having a pet has been the best thing for M.E.’ | 23 November 2017 Read More »
A few months ago, we asked our Facebook community what difference having a pet in their lives made to their abilities to cope with M.E.
The ME Association and Shella Films present: A very special lunchtime reception and exclusive screening of Unrest for MPs and honoured guests | 23 October 2017
Tomorrow (24th October) will see a very special lunchtime
The Times: Behind the story – A battle of prescriptions | 01 August 2017
The Times: Behind the story – A battle of prescriptions | 01 August 2017 Read More »
By Oliver Moody and Tom Whipple, The Times, 01 August 2017.
‘Outrageous interference’ with rule of law as DWP sets 80% benefit appeal rejection target | politics.co.uk | 16 May 2017
From politics.co.uk, 16 May 2017. Story by Natalie Bloomer. The
Watch the video of the Scottish Parliament debate on M.E. this afternoon | 11 May 2017
Watch the video of the Scottish Parliament debate on M.E. this afternoon | 11 May 2017 Read More »
There was a 30-minute debate to mark International ME Awareness
Call for retraction of PACE publication | Centre for Welfare Reform | 13 March 2017
Call for retraction of PACE publication | Centre for Welfare Reform | 13 March 2017 Read More »
From The Centre for Welfare Reform, 13 March 2017. An
South East London ME Support Group respond to ‘Improving Lives: The Health, Work and Disability Green Paper’ | 20 February 2017
This response was written by Catherine Hale and Patricia de