ME Awareness Press Release: Brits with devastating illness speak out about years lost in lockdown | 01 May 2020
For ME Awareness, the ME Association will be featuring stories from people with M.E. every day throughout May.
Welfare
The ME Association: Ten Key Points on Employment, ME/CFS and the Coronavirus | 27 March 2020
We provide an update on the measures in place to help people who are in employment during the coronavirus pandemic.
Statement: What’s next for the All-Party Parliamentary Group on ME? | 19 February 2020
Statement: What’s next for the All-Party Parliamentary Group on ME? | 19 February 2020 Read More »
We review what happened at the first meeting and list the MPs that attended. Biomedical research is on the agenda for the next APPG meeting in March.
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 Read More »
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019
Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019 Read More »
Severe M.E. Day is approaching in August, and we are asking you to share your stories and experiences.
Meeting with Minister raised important concerns about welfare benefits for people with ME | 26 June 2019
This is a report following the recent meeting with Justin Tomlinson. Thank you to everyone who responded to our request for information.
Forward ME: ‘People with ME do NOT have to undergo psychological therapy’ | 24 June 2019
Forward ME: ‘People with ME do NOT have to undergo psychological therapy’ | 24 June 2019 Read More »
These are the minutes from the Forward ME meeting held in May 2019.
Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019
“The results show clearly that cognitive behavioural therapy and graded exercise therapy are unsuitable treatments or management approaches for ME/CFS.”
The complete Ministerial response from the Parliamentary debate on M.E. treatment and research in Westminster Hall | 22 June 2018
A full transcript of the Ministerial response to the three-hour landmark debate on M.E. in Parliament.
ReMEmber Annual Conference with Dr Charles Shepherd and Dr Amolak Bansal is open to the general public | 27 April 2018
The Conference will take place in Burgess Hill on Saturday 12th May starting at 2.00pm.
Public consultation on PIP results in DWP pledge to record all assessments | 23 April 2018
“Labour will replace this failing system with personalised, holistic support, responsive to individual needs.” Margaret Greenwood MP.
ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Feedback Request: PIP Medical Assessments – Ahead of meeting tomorrow with the CMO from Capita at the House of Lords | 27 February 2018
We want to hear from anyone who has a recent example of a medical assessor expressing inaccurate or even sceptical/hostile opinions about ME/CFS.
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
‘Having a pet has been the best thing for M.E.’ | 23 November 2017
‘Having a pet has been the best thing for M.E.’ | 23 November 2017 Read More »
A few months ago, we asked our Facebook community what difference having a pet in their lives made to their abilities to cope with M.E.
The ME Association and Shella Films present: A very special lunchtime reception and exclusive screening of Unrest for MPs and honoured guests | 23 October 2017
Tomorrow (24th October) will see a very special lunchtime
The Times: Behind the story – A battle of prescriptions | 01 August 2017
The Times: Behind the story – A battle of prescriptions | 01 August 2017 Read More »
By Oliver Moody and Tom Whipple, The Times, 01 August 2017.
‘Outrageous interference’ with rule of law as DWP sets 80% benefit appeal rejection target | politics.co.uk | 16 May 2017
From politics.co.uk, 16 May 2017. Story by Natalie Bloomer. The
Watch the video of the Scottish Parliament debate on M.E. this afternoon | 11 May 2017
Watch the video of the Scottish Parliament debate on M.E. this afternoon | 11 May 2017 Read More »
There was a 30-minute debate to mark International ME Awareness