Work underway to support the development of a Delivery Plan on ME/CFS
Work underway to support the development of a Delivery Plan on ME/CFS Read More »
The Department of Health and Social Care has released the […]
Welfare
ME/CFS and Long Covid Research: 06 – 13 September 2022
ME/CFS and Long Covid Research: 06 – 13 September 2022 Read More »
The weekly research round-up includes recent publications about ME/CFS and Long Covid.
Development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
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The Guardian: UK doctors with Long Covid say they have been denied disability benefits
The Guardian: UK doctors with Long Covid say they have been denied disability benefits Read More »
The Guardian reports on the problems UK Doctors who caught
Rethinking ME: ‘These recommendations are considered the starting position for Government policy’ Carol Monaghan, MP
‘Rethinking ME’ is an important report from The All-Party Parliamentary
Surviving ME/CFS by Russell Fleming – Part 2
Surviving ME/CFS by Russell Fleming – Part 2 Read More »
This is Part 2 of the article by Russell Fleming.
Disabled people’s experiences of the benefits system: Committee publishes Government-commissioned research
The Work and Pensions Committee has used parliamentary powers to
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
America’s top covid doctor turns ME/CFS into a subject for general discussion as the pandemic deepens
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ Read More »
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
Higher risk of developing ME after coronavirus diagnosis, warns University of Leicester | 08 May 2020
“The link between severe viral infection and M.E. is clear, as evidenced in the previous outbreaks of SARS and Epstein Barr.”
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019 Read More »
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019
“The results show clearly that cognitive behavioural therapy and graded exercise therapy are unsuitable treatments or management approaches for ME/CFS.”
The complete Ministerial response from the Parliamentary debate on M.E. treatment and research in Westminster Hall | 22 June 2018
A full transcript of the Ministerial response to the three-hour landmark debate on M.E. in Parliament.
ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018
“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018
A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.