Severe M.E Awareness Week: My Story
Severe M.E Awareness Week: My Story Read More »
My name is Phil, and I’m 42. Four years ago, I would have described […]
Experts quit over call to drop exercise as treatment for ME
Experts quit over call to drop exercise as treatment for ME Read More »
A further report on the resignations appears in the Times
BMJ ARTICLE ABOUT NICE COMMITTEE RESIGNATIONS
BMJ ARTICLE ABOUT NICE COMMITTEE RESIGNATIONS Read More »
The BMJ reports 3 members of the NICE guideline committee
CHRONIC FATIGUE SYNDROME PATIENTS — IT’S TIME TO RECONSIDER OUR ATTITUDES
CHRONIC FATIGUE SYNDROME PATIENTS — IT’S TIME TO RECONSIDER OUR ATTITUDES Read More »
Sooyoung Lee, a recent medical graduate, writes in the British Journal
Dr Charles Shepherd stands down from the NICE guideline committee with immediate effect
Dr Charles Shepherd stands down from the NICE guideline committee with immediate effect Read More »
MEA statement re the development of the new NICE guideline
Research Summary – Passive transfer of fibromyalgia symptoms from patients to mice – July 2021
A recent publication by Goebel et al. with research carried
Scientists raise hopes of blood test for long Covid
Scientists raise hopes of blood test for long Covid Read More »
Extracts of an article in The Medical Device Network. Long
Open Letters to Healthcare Professionals from people with ME/CFS – Part 10: Teri
Open Letters to Healthcare Professionals from people with ME/CFS – Part 10: Teri Read More »
Seeing what’s happened with Long Covid has been awful. It is also frustrating watching the scientific effort now to find a cure when M.E. has been ignored for so long…
Open Letters to Healthcare Professionals from people with ME/CFS – Part 9 Gaynor
Open Letters to Healthcare Professionals from people with ME/CFS – Part 9 Gaynor Read More »
The new NICE Clinical Guideline for ME/CFS due to be published on
Emotions of carers who care for people with ME/CFS
Emotions of carers who care for people with ME/CFS Read More »
Knowing how to care I wish I knew how to
The challenges carers face when caring for people with ME/CFS
The challenges carers face when caring for people with ME/CFS Read More »
Pretending everything is Normal It took seven months for John
Guardian Article: I rested my way to recovery from long Covid. I urge others to do the same
Fiona Lowenstein writes in the Guardian of her experience of resting
Open Letters to Healthcare Professionals from people with ME/CFS – Part 8 Andrew
Open Letters to Healthcare Professionals from people with ME/CFS – Part 8 Andrew Read More »
I’m Andrew and have had ME/CFS for over 20 years. It’s been a difficult road, but you have seen me over that time to try to help. Some of you have been helpful and some have been understanding, and I thank you for that.
Being a carer for someone with ME/CFS
Being a carer for someone with ME/CFS Read More »
Are you a carer? I am. I am not a
Long Covid and ME/CFS: Autoantibodies, neurotransmitters and autonomic nervous system dysfunction
The new paper in Nature looks at the possible role of two specific neurotransmitter receptor autoantibodies in Long COVID and ME/CFS
Guest Blog: The Shame
Guest Blog: The Shame Read More »
I’m ashamed to say I have M.E. I’ve collapsed in
Open Letters to Healthcare Professionals from people with ME/CFS – Part 7 Nancy
Open Letters to Healthcare Professionals from people with ME/CFS – Part 7 Nancy Read More »
Please be aware of the effects of going through the peri-menopause, and then the menopause, for women with ME.
Open Letters to Healthcare Professionals from people with ME/CFS – Part 6 Angela & Stuart
The new NICE Clinical Guideline for ME/CFS is due to be published
Open Letters to Healthcare Professionals from people with ME/CFS – Part 5 Maryjane
Open Letters to Healthcare Professionals from people with ME/CFS – Part 5 Maryjane Read More »
The new NICE Clinical Guideline for ME/CFS is due to be published