The Times: “People with ME have been ignored for far too long”
The Times: “People with ME have been ignored for far too long” Read More »
“This Sunday, World ME Day, is an opportunity to refocus minds on how much more needs to be done.”
Research: Long Covid clinical trials to study sleep disturbances, exercise intolerance, and post exertional malaise
“We urgently need to come up with answers to help those struggling with Long Covid feel whole again.”
Parliamentary question: Hospital compliance with NICE Guideline on ME/CFS
Parliamentary question: Hospital compliance with NICE Guideline on ME/CFS Read More »
Baroness Scott tabled a question about hospital compliance with the NICE Guideline on ME/CFS.
An incomplete picture: understanding the burden of Long Covid
An incomplete picture: understanding the burden of Long Covid Read More »
An international report examining the impact of Long Covid with recommendations to improve health outcomes.
Westminster Hall Debate: When will the Final Delivery Plan on ME/CFS be published?
Westminster Hall Debate: When will the Final Delivery Plan on ME/CFS be published? Read More »
We can now expect the Final Delivery Plan on ME/CFS later this year hopefully.
Research: More than a quarter of people infected by Covid develop Long Covid
Research: More than a quarter of people infected by Covid develop Long Covid Read More »
The researchers are calling for yearly Covid-19 vaccinations to be rolled out.
Parliamentary Questions: Inpatient provision, hospital knowledge of NICE Guideline, and DHSC Delivery Plan on ME/CFS
Andrew Stephenson answers questions from Seema Malhorta in parliament.
ME Association Statement and Parliamentary Question: People with ME/CFS at risk of starvation
Implementation of the NICE Guideline has clearly failed in these and other hospitals…
Neurology Today: Are ME/CFS and Long Covid part of the same disorder?
Neurology Today: Are ME/CFS and Long Covid part of the same disorder? Read More »
“We believe these are virtually the same disease…” Avidra Nath NINDS.
Open Access Government: The silent struggle for Long Covid patients
Open Access Government: The silent struggle for Long Covid patients Read More »
Long Covid is estimated to cost the UK economy £1.5bn each year…
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS
Australia: Significant overlap in neurochemicals in Long Covid and ME/CFS Read More »
The research found significantly elevated Glutamate and N-acetyl-aspartate levels in Long Covid and ME/CFS…
Patient Reported Outcome Measures (PROMs) in ME/CFS
Patient Reported Outcome Measures (PROMs) in ME/CFS Read More »
A welcome review of the Chalder Fatigue Scale has prompted a statement from Professor Tyson about the PROMs project she is leading…
Byline Times: ‘A Rollercoaster Of Awful Emotions’
Byline Times: ‘A Rollercoaster Of Awful Emotions’ Read More »
Millie McAinsh’s family sought help when the ME sufferer could no longer eat – only for her to to be sectioned…
BMJ: Cognitive dysfunction in Long Covid – and in ME/CFS!
BMJ: Cognitive dysfunction in Long Covid – and in ME/CFS! Read More »
A recent review published by the British Medical Journal on Long Covid… that didn’t consider the notable overlap with ME/CFS…
MAGENTA Trial: GET is not an effective treatment for ME/CFS
MAGENTA Trial: GET is not an effective treatment for ME/CFS Read More »
Graded exercise therapy is not an effective treatment for chilren and young people with ME/CFS.
JNNP: NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence
JNNP: NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence Read More »
The National Institure for Health and Care Excellence robustly defends its Guideline on ME/CFS.
NIH study of ME/CFS points to immune dysfunction and brain abnormalities
NIH study of ME/CFS points to immune dysfunction and brain abnormalities Read More »
ME/CFS is a disease with clear biological hallmarks.
Royal College of Anaesthetists launch new leaflet on ME/CFS at conference
Royal College of Anaesthetists launch new leaflet on ME/CFS at conference Read More »
Working with the ME Association and patients the RCoA launch a new leaflet on ME/CFS.
BBC Dragon’s Den: British Acupuncture Council: Statement on ear seeds for ME/CFS
BBC Dragon’s Den: British Acupuncture Council: Statement on ear seeds for ME/CFS Read More »
The BAcC has released a statement on the efficacy of acupuncture and ear seeds for ME/CFS.
Nature: Graded Exercise Therapy should not be recommended for patients with Post-Exertional Malaise
International clinicians speak out against recommending GET for patients with Long Covid.