The ME Association’s Position Statement on the Proposed Welfare Reforms
The ME Association’s Position Statement on the Proposed Welfare Reforms Read More »
By Ella Smith, Welfare Rights Consultant & Paul Jones, Policy […]
First joint ME and Long Covid APPG meeting minutes are now available!
First joint ME and Long Covid APPG meeting minutes are now available! Read More »
The official minutes from the first joint ME and Long
The ME Association responds to unsubstantiated claims that bloodletting can treat serious medical conditions
An article in the Mirror explains that bloodletting involves drawing
Carers Week 2025: Sally Giles: A carer’s story
Carers Week 2025: Sally Giles: A carer’s story Read More »
My advice to anyone caring for someone with ME is
Carers Week 2025: The ME Association attends the Carers Week parliamentary drop-in event
Carers Week 2025: The ME Association attends the Carers Week parliamentary drop-in event Read More »
Click the arrows to scroll through the photos On Wednesday
Carers Week 2025: Andy Mayes: A carer’s story
Carers Week 2025: Andy Mayes: A carer’s story Read More »
As a carer, I don’t claim any benefits and have
Carers Week 2025: Ace: A young carer’s story
Carers Week 2025: Ace: A young carer’s story Read More »
I don’t mind caring for my mum, it’s normal, it’s
Carers Week 2025: Anna Symington: A carer’s story
Carers Week 2025: Anna Symington: A carer’s story Read More »
I have great respect for all carers. We take on
Carers Week 2025: Unpaid carers in employment need further support to improve their health and wellbeing
Findings mark the start of Carers Week which takes place
Carers Week 2025: Dave Sharratt: A carer’s story
Carers Week 2025: Dave Sharratt: A carer’s story Read More »
One main issue is that not all doctors acknowledge ME/CFS
Carers Week 2025: Nearly half of UK adults say their health has been impacted since caring, reporting new or worsening conditions
Findings mark the start of Carers Week which takes place
Open Mind: Chronic Denial by David Tuller
Open Mind: Chronic Denial by David Tuller Read More »
A debunked theory about [ME] chronic fatigue syndrome is being
CAB Report: Pathways to Poverty: How planned cuts to disability benefits will impact the people we support
The Citizens Advice Bureau (CAB) have produced a report –
NHS Scotland adopts NICE NG206 in place of Scottish Good Practice Statement
NHS Scotland adopts NICE NG206 in place of Scottish Good Practice Statement Read More »
Scottish Government announces withdrawal of the Scottish Good Practice Statement
Write to your MP about the recent announcements on Welfare Reform
Write to your MP about the recent announcements on Welfare Reform Read More »
On Tuesday (18.03.25), the Rt Hon Liz Kendall MP, Secretary
Preprint: A Proposed Mechanism for ME/CFS Invoking Macrophage FcγRI and Interferon Gamma
Preprint: A Proposed Mechanism for ME/CFS Invoking Macrophage FcγRI and Interferon Gamma Read More »
The conclusion states: “the available evidence relating to ME/CFS points
They went Blue for ME – Richmond yoga group supports people with ME/CFS
They went Blue for ME – Richmond yoga group supports people with ME/CFS Read More »
Richmond yoga group FIT Yoga showed their solidarity with the
PIP assessments for people with ME/CFS: DWP training and guidance for PIP assessors
PIP assessments for people with ME/CFS: DWP training and guidance for PIP assessors Read More »
Obtained through a Freedom of Information request, this is the
Treating Long Covid and Post Covid ME/CFS with LDN
Treating Long Covid and Post Covid ME/CFS with LDN Read More »
Low-dose naltrexone (LDN) has been identified as a potential treatment
NICE requires lay members to join their Prioritisation Board
NICE requires lay members to join their Prioritisation Board Read More »
Having been involved with preparation of the NICE guideline on