BACME has sent the ME Association the following statement to share with our followers for information purposes.
BACME Statement
The British Association of Clinicians in ME/CFS (BACME) welcomes the publication of findings from the DecodeME study, the largest genetic investigation into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to date. This robust research has identified eight genetic markers that are significantly more common in people with ME/CFS compared to the general population. These markers are linked to both the immune and nervous systems, providing important evidence for immunological and neurological involvement in this complex and often misunderstood condition.
These findings represent a major step forward in validating the biological basis of ME/CFS. They offer hope for the development of a future diagnostic test and bring long overdue recognition to those living with the condition. The DecodeME research aligns with the Department of Health and Social Care’s Delivery Plan, which emphasises the importance of research, improving understanding of individuals experience of ME/CFS, and enhancing education for health professionals. BACME strongly supports continued research into the biological mechanisms of ME/CFS and looks forward to seeing these insights translated into clinical practice — ultimately improving diagnosis, treatment, and care for everyone affected by ME/CFS.
Anna Gregorowski, BACME Chair
DecodeME Information
- Decode ME Website
- Edinburgh University Press Release: Key genetic differences found in people with ME/CFS | August, 6, 2025
- Edinburgh University: Preprint Paper: Initial findings from the DecodeME genome-wide association study of ME/CFS | August, 6, 2025
- DecodeME Blog: Initial DecodeME DNA Results | August, 6, 2025
- DecodeME Blog: X marks the spot where ME/CFS biology can be discovered | August, 6, 2025
- The ME Association: Decode ME release initial DNA results! | August, 7, 2025
- The ME Association: The Guardian: Scientists find link between genes and ME/CFS | August, 7, 2025
- The ME Association: Channel 4 News Video: ME linked to your genetics – early study indicates | August, 7, 2025
- The ME Association: Meet The Scientist: Professor Chris Ponting – DecodeME | July 29, 2020